SynthesisHealth expectations : an international journal of public participation in health care and health policy2015
Experiences of UK health-care services for people with Multiple Sclerosis: a systematic narrative review.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Hormone Replacement Therapy and Risk of Breast Cancer in Korean Women: A Quantitative Systematic Review.Journal of preventive medicine and public health = Yebang Uihakhoe chi · 2015Pooled it
- Exploration of suicidal thinking in people with multiple sclerosis: an interpretative phenomenological analysis.Health psychology and behavioral medicine · 2026Article
- Experiences of receiving a diagnosis of multiple sclerosis: a meta-synthesis of qualitative studies.Disability and rehabilitation · 2023Article
- Evaluating the impact of patient-reported outcome measures on depression and anxiety levels in people with multiple sclerosis: a study protocol for a randomized controlled trial.BMC neurology · 2023Article
- Improving Digital Patient Care: Lessons Learned from Patient-Reported and Expert-Reported Experience Measures for the Clinical Practice of Multidimensional Walking Assessment.Brain sciences · 2021Article
- Delayed diagnosis of multiple sclerosis in males: may account for and dispel common understandings of different MS 'types'.The British journal of general practice : the journal of the Royal College of General Practitioners · 2019Article
- System-Wide and Group-Specific Health Service Improvements: Cross-Sectional Survey of Outpatient Improvement Preferences and Associations with Demographic Characteristics.International journal of environmental research and public health · 2018Article
- Identifying preferred format and source of exercise information in persons with multiple sclerosis that can be delivered by health-care providers.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Article
- Multiple sclerosis patients need and want information on exercise promotion from healthcare providers: a qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Delivering patient-centred care in rural family practice: using the patient's concept of health to guide treatment.BMJ case reports · 2017Article
- Article
- PICO, PICOS and SPIDER: a comparison study of specificity and sensitivity in three search tools for qualitative systematic reviews.BMC health services research · 2014Article
- Narrative reviews.Epidemiology and health · 2014Article
- Initiating disease-modifying treatments in multiple sclerosis: Measuring the decision process using decisional conflict and decisional regret scales.Multiple sclerosis journal - experimental, translational and clinicalArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundMultiple Sclerosis (MS) is a chronic, degenerative condition with an estimated UK prevalence of 100 000. Contact with health-care services is frequent and long-term; however, little research has investigated the experiences of health care for MS in the UK.
objectiveThe aim of this systematic narrative review was to critically review qualitative studies reporting patients' experiences of health-care services in the UK. SEARCH STRATEGY: EMBASE, CINAHL, Medline, psychINFO and MS Society databases were searched with no date restrictions using search terms denoting 'Multiple Sclerosis', 'health-care services', 'patient', 'experience' and 'qualitative research'. Snowballing and hand searching of journals were used. INCLUSION CRITERIA: Studies were included if they used qualitative methods of data collection and analysis to investigate adult patient's experiences of health-care services for MS in the UK. DATA EXTRACTION AND SYNTHESIS: Data were extracted independently and analysed jointly by two reviewers. Studies were appraised for the quality of evidence described using the Critical Appraisal Skills Programme's qualitative tool. Due to the breadth of areas covered, the data were too heterogeneous for a synthesis and are presented as a narrative review. MAIN RESULTS AND DISCUSSION: Five studies were included. Studies primarily investigated diagnosis or palliative care. Themes of importance were the emotional experience of health care, continuity of care and access to services, and support from health-care professionals. Studies were mainly poor quality and focussed on a homogenous sample.
conclusionsThis study provides the first review of the UK evidence base of experiences of health care for MS. Future research should investigate experiences of care after diagnosis in a more varied sample of participants.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.