ArticleJournal of aging studies2014
"This is our last stop": Negotiating end-of-life transitions in assisted living.
Article in Journal of aging studies, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 45 citations in OpenAlex.
- "It's more than connecting tubes": a qualitative inquiry into nurses' emotional labor in dialysis units.BMC nursing · 2026Article
- A Mixed-Methods Study of End-of-Life Care in Assisted Living During the COVID-19 Pandemic: National Survey of Administrators and In-Depth Interviews With Bereaved Next of Kin.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Opportunities to Improve End-of-Life Care in Assisted Living: Results From a National Survey of Administrators.Journal of the American Medical Directors Association · 2026Article
- "There Should Be a Nurse on Call": Complex Care Needs of Low-Income Older Adults in Medicaid-Supported Assisted Living.Journal of palliative medicine · 2025Article
- Turning It Over to God: African American Assisted Living Residents' End-of-Life Preferences and Advance Care Planning.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Review
- "I didn't know it was going to be like this.": unprepared for end-of-Life care, the experiences of care aides care in long-term care.BMC palliative care · 2023Article
- State Regulations and Assisted Living Residents' Potentially Burdensome Transitions at the End of Life.Journal of palliative medicine · 2023Article
- "You gotta have your cry": Administrator and direct care worker experiences of death in assisted living.Journal of aging studies · 2022Article
- Association Between State Regulations Supportive of Third-party Services and Likelihood of Assisted Living Residents in the US Dying in Place.JAMA health forum · 2022Article
- Ethics of Health Information Sharing and Social Relationships at End of Life in Assisted Living.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Article
- Assisted Living Administrators' Approaches to Advance Care Planning.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Article
- Places of living and places of dying: the case for preventing suicide in residential long-term care.Ageing and society · 2021Article
- Organizational Characteristics of Assisted Living Communities With Policies Supportive of Admitting and Retaining Residents in Need of End-of-Life Care.The American journal of hospice & palliative care · 2021Article
- Trends In Residential Setting And Hospice Use At The End Of Life For Medicare Decedents.Health affairs (Project Hope) · 2020Article
- Communicative Competence: Responding to Residents' Health Changes in Assisted Living.The Gerontologist · 2020Article
- Optimizing Quality of Life With Cognitive Impairment: A Study of End-of-Life Care in Assisted Living.Journal of the American Medical Directors Association · 2020Observational
- State Variability in Assisted Living Residents' End-of-Life Care Trajectories.Journal of the American Medical Directors Association · 2020Observational
- Individualization and the Health Care Mosaic in Assisted Living.The Gerontologist · 2019Article
- Contours of "here": Phenomenology of space for assisted living residents approaching end of life.Journal of aging studies · 2018Article
- Dying comfortably in very old age with or without dementia in different care settings - a representative "older old" population study.BMC geriatrics · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
Where people die has important implications for end-of-life (EOL) care. Assisted living (AL) increasingly is becoming a site of EOL care and a place where people die. AL residents are moving in older and sicker and with more complex care needs, yet AL remains largely a non-medical care setting that subscribes to a social rather than medical model of care. The aims of this paper are to add to the limited knowledge of how EOL is perceived, experienced, and managed in AL and to learn how individual, facility, and community factors influence these perceptions and experiences. Using qualitative methods and a grounded theory approach to study eight diverse AL settings, we present a preliminary model for how EOL care transitions are negotiated in AL that depicts the range of multilevel intersecting factors that shape EOL processes and events in AL. Facilities developed what we refer to as an EOL presence, which varied across and within settings depending on multiple influences, including, notably, the dying trajectories and care arrangements of residents at EOL, the prevalence of death and dying in a facility, and the attitudes and responses of individuals and facilities toward EOL processes and events, including how deaths were communicated and formally acknowledged and the impact of death and dying on the residents and staff. Our findings indicate that in the majority of cases, EOL care must be supported by collaborative arrangements of care partners and that hospice care is a critical component.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.