ArticleAcademic pediatrics
Family impacts among children with autism spectrum disorder: the role of health care quality.
Article in Academic pediatrics. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 52 citations in OpenAlex.
- C reactive protein elevation among children or among mothers' of children with autism during pregnancy, a review and meta-analysis.BMC psychiatry · 2020Pooled it
- Impact of Family Structure on Parental Stress and Child Severity Scores After Early Intervention Therapy in Children with Autism.Indian journal of pediatrics · 2026Article
- Structural, Institutional, and Interpersonal Racism: Calling for Equity in Autism Research and Practice.Journal of racial and ethnic health disparities · 2026Review
- Parent-Mediated Autism Intervention Through a Culturally Informed Lens: Parents Taking Action and Pivotal Response Training with Latine Families.Healthcare (Basel, Switzerland) · 2024Article
- Review
- Theoretical-Methodological Foundations for the Global Integration Method (Método de Integração Global-MIG) in the Treatment of Autism Spectrum Disorder.Children (Basel, Switzerland) · 2024Review
- Adaptation of the Parents Taking Action Program for Diné (Navajo) Parents of Children with Autism.Frontiers in education · 2023Article
- Caregiver strain among North American parents of children from the Autism Treatment Network Registry Call-Back Study.Autism : the international journal of research and practice · 2022Article
- Developing undergraduate autism education for medical students: a qualitative study.BMJ paediatrics open · 2022Article
- A Scoping Review of Targeted Interventions and Training to Facilitate Medical Encounters for School-Aged Patients with an Autism Spectrum Disorder.Journal of autism and developmental disorders · 2021Article
- A Profile of Care Coordination, Missed School Days, and Unmet Needs Among Oregon Children with Special Health Care Needs with Behavioral and Mental Health Conditions.Community mental health journal · 2020Article
- Healthcare access and adverse family impact among U.S. children ages 0-5 years by prematurity status.BMC pediatrics · 2020Article
- Healthcare access and services use among US children with autism spectrum disorder.Autism : the international journal of research and practice · 2019Article
- Ethical Implications for Providers Regarding Cannabis Use in Children With Autism Spectrum Disorders.Pediatrics · 2019Article
- Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample.Journal of autism and developmental disorders · 2018Article
- Brief Report: Factors Associated with Emergency Department Visits for Epilepsy Among Children with Autism Spectrum Disorder.Journal of autism and developmental disorders · 2018Article
- Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families.Pediatrics · 2017Article
- Shared Decision Making in the Care of Children with Developmental and Behavioral Disorders.Maternal and child health journal · 2016Article
- A Comparison of Parent-Reported Severe Autism With Mild/Moderate Autism Among US Children.Journal of developmental and behavioral pediatrics : JDBPArticle
- Unmet Health Services Needs Among US Children with Developmental Disabilities: Associations with Family Impact and Child Functioning.Journal of developmental and behavioral pediatrics : JDBPArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveTo compare health care quality and family employment and financial impacts among children with special health care needs (CSHCN) with autism spectrum disorder (CSHCN + ASD), CSHCN with functional limitations (CSHCN + FL), and CSHCN lacking these conditions (other CSHCN); to test whether high health care quality was associated with reduced family impacts among CSHCN + ASD.
methodsData from the 2009-2010 National Survey of CSHCN were used to compare 3025 CSHCN + ASD, 6505 CSHCN + FL, and 28,296 other CSHCN. Weighted multivariate logistic regression analyses examined 6 age-relevant, federally defined health care quality indicators and 5 family financial and employment impact indicators. Two composite measures were additionally used: 1) receipt of care that met all age-relevant quality indicators; and 2) had ≥ 2 of the 5 adverse family impacts.
resultsAcross all health care quality indicators, CSHCN + ASD fared poorly, with only 7.4% meeting all age-relevant indicators. CSHCN + ASD had worse health care quality than other CSHCN, including CSHCN + FL. CSHCN + ASD also had high rates of adverse family impact, with over half experiencing ≥ 2 adverse impacts. Rates of adverse family impact were higher in CSHCN + ASD than other CSHCN, including CSHCN + FL. Among CSHCN + ASD, those whose health care that met federal quality standards were less likely to have multiple adverse family impacts than CSHCN + ASD whose health care did not meet federal quality standards.
conclusionsCSHCN + ASD are more prone to experience poor health care quality and family impacts than other CSHCN, even CSHCN + FL. Receipt of care meeting federal quality standards may potentially lessen adverse family impacts for CSHCN + ASD.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.