ArticlePloS one2014
Patients' preferences for participation in treatment decision-making at the end of life: qualitative interviews with advanced cancer patients.
Article in PloS one, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 54 papers, 5 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
54 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Question prompt list intervention for patients with advanced cancer: a systematic review and meta-analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Pooled it
- Pooled it
- Quality of life versus length of life considerations in cancer patients: A systematic literature review.Psycho-oncology · 2019Pooled it
- Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis.Journal of adolescent and young adult oncology · 2017Pooled it
- Experiences of Using Patient Decision Aids for Decisions About Cancer Treatment: A Meta-Aggregation of Qualitative Studies.Cancer nursingPooled it
- Potential Adverse Outcomes of Shared Decision Making about Palliative Cancer Treatment: A Secondary Analysis of a Randomized Trial.Medical decision making : an international journal of the Society for Medical Decision Making · 2024Trial
- Effect of a Skills Training for Oncologists and a Patient Communication Aid on Shared Decision Making About Palliative Systemic Treatment: A Randomized Clinical Trial.The oncologist · 2020Trial
- Decision aids for second-line palliative chemotherapy: a randomised phase II multicentre trial.BMC medical informatics and decision making · 2017Trial
- Medical information and decision-making in palliative cancer: a qualitative study of patients' perceptions, needs, and preferences regarding physician communication.BMC palliative care · 2026Article
- Factors influencing palliative care decision-making participation among elderly patients in the terminal stage: a cross-sectional study.BMC palliative care · 2026Article
- Beyond Lip Service: A Position Paper to Truly Stimulate Shared Decision-Making.Journal of advanced nursing · 2026Article
- From consultation to choice: gynecologic cancer patients' perspectives on shared decision making in clinical practice - findings from a cross-sectional observational qualitative interview study.BMC medical ethics · 2026Observational
- The Bidirectional Relationship between Psoriatic Arthritis and Mental Health: A Comprehensive Review.Current rheumatology reviews · 2026Review
- A scoping review: Understanding brain tumor patients' decisional needs and preferences.Neuro-oncology practice · 2025Review
- Article
- A thematic analysis of shared decision-making in consultations with patients with a presumed brain tumor and neurosurgeons.Neuro-oncology practice · 2025Article
- Attributes Desired in a General Practitioner by Adults: Implications for Humanization in Medicine and Enhancement of the Patient Experience.Healthcare (Basel, Switzerland) · 2024Article
- The focus on life-prolonging anticancer treatment hampers shared decision-making in people with advanced cancer: A qualitative embedded multiple-case study.Palliative medicine · 2024Article
- Article
- How Do Patients and Caregivers in Advanced Illness Support One Another in Decision-Making for Patient Care? A Qualitative Interview Study of Patient and Caregiver Dyads in Specialist Palliative Care.Palliative medicine reports · 2024Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposePatients are often encouraged to participate in treatment decision-making. Most studies on this subject focus on choosing between different curative treatment types. In the last phase of life treatment decisions differ as they often put more emphasis on weighing quantity against quality of life, such as whether or not to start treatment aimed at life prolongation but with the possibility of side effects. This study aimed to obtain insight into cancer patients' preferences and the reasons for patients' preferred role in treatment decision-making at the end of life.
methods28 advanced cancer patients were included at the start of their first line treatment. In-depth interviews were held prior to upcoming treatment decisions whether or not to start a life prolonging treatment. The Control Preference Scale was used to start discussing the extent and type of influence patients wanted to have concerning upcoming treatment decision-making. Interviews were audio taped and transcribed.
resultsAll patients wanted their physician to participate in the treatment decision-making process. The extent to which patients themselves preferred to participate seemed to depend on how patients saw their own role or assessed their own capabilities for participating in treatment decision-making. Patients foresaw a shift in the preferred level of participation to a more active role depending in the later phase of illness when life prolongation would become more limited and quality of life would become more important.
conclusionPatients vary in how much involvement they would like to have in upcoming treatment decision-making. Individual patients' preferences may change in the course of the illness, with a shift to more active participation in the later phases. Communication about patients' expectations, wishes and preferences for participation in upcoming treatment decisions is of great importance. An approach in which these topics are openly discussed would be beneficial.
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