Evidence map›Paper›PMID 24952739›Full record

ArticleJournal of clinical psychology in medical settings2014

Shared decision-making among caregivers and health care providers of youth with type 1 diabetes.

Jessica M Valenzuela, Laura B Smith, Jeanette M Stafford, Ralph B D'Agostino, Jean M Lawrence, Joyce P Yi-Frazier, Michael Seid, Lawrence M Dolan

Registry-linked trialAbstract readMulticenter Study
In one paragraph

Article in Journal of clinical psychology in medical settings, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04614623 (Defining the Role of Management Factors in Outcome Disparity in Pediatric T1D), which is not on this map. Cited by 20 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04614623 naunknown statusnot on this mapstarted 2020, after this paper: background citation

Defining the Role of Management Factors in Outcome Disparity in Pediatric T1D

TypeinterventionalSponsorChildren's Hospital New Orleans, LARan2020 to 2022Enrolled120ConditionsType1diabetesArmsAHCL pump, Video conferencing Application
3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Inpatient Use of Automated Insulin Delivery Systems.Journal of diabetes science and technology · 2026
    Review
  4. Article
  5. Experiences With Outpatient Nutrition Services Among Caregivers of Youth With Type 1 Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2024
    Article
  6. Article
  7. Article
  8. Article
  9. Promoting High-Quality Health Communication Between Young Adults With Diabetes and Health Care Providers.Diabetes spectrum : a publication of the American Diabetes Association · 2021
    Article
  10. Article
  11. Therapeutic Inertia in Pediatric Diabetes: Challenges to and Strategies for Overcoming Acceptance of the Status Quo.Diabetes spectrum : a publication of the American Diabetes Association · 2020
    Article
  12. Article
  13. Promoting Shared Decision-Making Behaviors During Inpatient Rounds: A Multimodal Educational Intervention.Academic medicine : journal of the Association of American Medical Colleges · 2019
    Article
  14. Article
  15. Article
  16. Shared decision-making using personal health record technology: a scoping review at the crossroads.Journal of the American Medical Informatics Association : JAMIA · 2017
    Article
  17. A Provider's Perspective on the Management of Diabetes From Preschool Through the Teen Years.Diabetes spectrum : a publication of the American Diabetes Association · 2016
    Article
  18. Review
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jessica M ValenzuelaCenter for Psychological Studies, Nova Southeastern University, 3301 College Ave., Fort Lauderdale, FL, 33314, USA, jv637@nova.edu.
Laura B Smith
Jeanette M Stafford
Ralph B D'Agostino
Jean M Lawrence
Joyce P Yi-Frazier
Michael Seid
Lawrence M Dolan

Funding

Institute of Translational Health SciencesUL1TR000423 · NCATS · UNIVERSITY OF WASHINGTON · PI DISIS, MARY L. · 2012 to 2016
$49.4M
Colorado Clinical and Translational Sciences InstituteUL1TR001082 · NCATS · UNIVERSITY OF COLORADO DENVER · PI SOKOL, RONALD J. · 2013 to 2017
$48.0M
Colorado Clinical and Translational Science Institute (UL1)UL1TR000154 · NCATS · UNIVERSITY OF COLORADO DENVER · PI SOKOL, RONALD J. · 2012 to 2013
$20.4M
CTSA INFRASTRUCTURE FOR PEDIATRIC RESEARCHUL1RR026314 · NCRR · UNIVERSITY OF CINCINNATI · PI HEUBI, JAMES E. · 2009 to 2011
$14.3M
UCHSC DIABETES ENDOCRINOLOGY RESEARCH CENTERP30DK057516 · NIDDK · UNIVERSITY OF COLORADO DENVER · PI HUTTON, JOHN C · 2000 to 2010
$14.0M
SOUTH CAROLINA CLINICAL & TRANSLATIONAL RESEARCH INSTITUTE (SCTR)UL1RR029882 · NCRR · MEDICAL UNIVERSITY OF SOUTH CAROLINA · PI BRADY, KATHLEEN T. · 2009 to 2011
$10.1M
Cincinnati Center for Clinical and Translational Sciences and TrainingUL1TR000077 · NCATS · UNIVERSITY OF CINCINNATI · PI HEUBI, JAMES E., TSEVAT, JOEL · 2012 to 2014
$9.9M
SEARCH for Diabetes in Youth Coordinating CenterU01DP000250 · DP · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI BELL, RONNY A · 2005 to 2009
$4.8M
SEARCH For Diabetes in Youth, Phase 3: Cohort Study-Carolina CenterU18DP002708 · DP · UNIV OF NORTH CAROLINA CHAPEL HILL · PI MAYER-DAVIS, ELIZABETH J · 2010 to 2014
$3.6M
SEARCH for Diabetes in Youth 2: Colorado CenterU01DP000247 · DP · UNIVERSITY OF COLORADO DENVER · PI DABELEA, DANA · 2005 to 2009
$3.6M
SEARCH for Diabetes in Youth 2: South Carolina CenterU01DP000254 · DP · UNIV OF NORTH CAROLINA CHAPEL HILL · PI MAYER-DAVIS, ELIZABETH J · 2005 to 2009
$3.5M
SEARCH for Diabetes in Youth 3: Washington Site, Part BU18DP002710 · DP · SEATTLE CHILDREN'S HOSPITAL · PI PIHOKER, CATHERINE · 2010 to 2014
$3.2M
HSRD VA HIR 10-001NCATS NIH HHS UL1 TR000077NCATS NIH HHS UL1 TR000154NCATS NIH HHS UL1TR000154NCATS NIH HHS UL1 TR000423NCATS NIH HHS UL1 TR001082NCATS NIH HHS UL1 TR00423NCCDPHP CDC HHS 1U18DP002709NCCDPHP CDC HHS DP-05-069NCCDPHP CDC HHS DP-10-001NCCDPHP CDC HHS U01 DP000244NCCDPHP CDC HHS U01 DP000245NCCDPHP CDC HHS U01 DP000246NCCDPHP CDC HHS U01 DP000247NCCDPHP CDC HHS U01 DP000248NCCDPHP CDC HHS U01 DP000250NCCDPHP CDC HHS U01 DP000254NCCDPHP CDC HHS U18DP000247-06A1NCCDPHP CDC HHS U18 DP002708NCCDPHP CDC HHS U18DP002708NCCDPHP CDC HHS U18 DP002709NCCDPHP CDC HHS U18 DP002710NCCDPHP CDC HHS U18DP002710-01NCCDPHP CDC HHS U18 DP002714NCCDPHP CDC HHS U18DP002714NCRR NIH HHS UL1 RR026314NCRR NIH HHS UL1 RR029882NCRR NIH HHS UL1RR029882NIDDK NIH HHS P30 DK057516NIDDK NIH HHS P30 DK57516PHS HHS U48/CCU419249PHS HHS U48/CCU519239PHS HHS U48/CCU919219PHS HHS U58/CCU019235-4PHS HHS U58CCU919256
6 · The paper itself

Abstract

The present study aimed to examine perceptions of shared decision-making (SDM) in caregivers of youth with type 1 diabetes (T1D). Interview, survey data, and HbA1c assays were gathered from caregivers of 439 youth with T1D aged 3-18 years. Caregiver-report indicated high perceived SDM during medical visits. Multivariable linear regression indicated that greater SDM is associated with lower HbA1c, older child age, and having a pediatric endocrinologist provider. Multiple logistic regression found that caregivers who did not perceive having made any healthcare decisions in the past year were more likely to identify a non-pediatric endocrinologist provider and to report less optimal diabetes self-care. Findings suggest that youth whose caregivers report greater SDM may show benefits in terms of self-care and glycemic control. Future research should examine the role of youth in SDM and how best to identify youth and families with low SDM in order to improve care.

Indexed as

Professional-Family RelationsAdolescentAge FactorsCaregiversChildChild, PreschoolCommunicationDecision MakingDiabetes Mellitus, Type 1FemaleHealth PersonnelHumansMalePatient ParticipationSelf CareSocioeconomic Factors

Identifiers

PMID24952739
PMCPMC4135709

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.