ReviewGenome medicine2014
ELSI practices in genomic research in East Asia: implications for research collaboration and public participation.
Review in Genome medicine, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed.
- Ethical Priorities Among Commercial Genomics Professionals : Survey Evidence Highlighting Diversity, Fragmented Privacy Law, and Human Rights Risks as Central Participant Concerns.Journal of bioethical inquiry · 2026Article
- From designer babies to edited food: comparing public attitudes toward CRISPR technology and gene editing in Japan and the United States.BMC medical ethics · 2026Article
- International Survey on Genetic Literacy and Awareness in Patients With Spinal and Bulbar Muscular Atrophy.Neurology. Genetics · 2026Article
- Conditional trust as a driver of public engagement in Korea's national project of bio-big data.Frontiers in genetics · 2025Article
- Ophthalmic genetic counselling: emerging trends in practice perspectives in Asia.Journal of community genetics · 2023Article
- Genetic/genomic testing: defining the parameters for ethical, legal and social implications (ELSI).BMC medical ethics · 2021Article
- Anticipating the ethical, legal, and social implications of human genome research: An ongoing experiment.American journal of medical genetics. Part A · 2021Article
- Research culture: science from bench to society.Biology open · 2021Article
- Genetic discrimination: introducing the Asian perspective to the debate.NPJ genomic medicine · 2021Review
- Meaning of Ambiguity: A Japanese Survey on Synthetic Biology and Genome Editing.Frontiers in sociology · 2019Article
- Implementation of genomics in medical practice to deliver precision medicine for an Asian population.NPJ genomic medicine · 2019Review
- Including all voices in international data-sharing governance.Human genomics · 2018Article
- Genomic medicine for kidney disease.Nature reviews. Nephrology · 2018Review
- Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach.Frontiers in public health · 2018Article
- Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond.Frontiers in genetics · 2017Article
- Genomic research in Zambia: confronting the ethics, policy and regulatory frontiers in the 21st Century.Health research policy and systems · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Common infrastructures and platforms are required for international collaborations in large-scale human genomic research and policy development, such as the Global Alliance for Genomics and Health and the 'ELSI 2.0' initiative. Such initiatives may require international harmonization of ethical and regulatory requirements. To enable this, however, a greater understanding of issues and practices that relate to the ethical, legal and social implications (ELSI) of genomic research will be needed for the different countries and global regions involved in such research. Here, we review the ELSI practices and regulations for genomic research in six East Asian countries (China, Indonesia, Japan, Singapore, South Korea and Taiwan), highlighting the main similarities and differences between these countries, and more generally, in relation to Western countries. While there are significant differences in ELSI practices among these East Asian countries, there is a consistent emphasis on advancing genomic science and technology. In addition, considerable emphasis is placed on informed consent for participation in research, whether through the contribution of tissue samples or personal information. However, a higher level of engagement with interested stakeholders and the public will be needed in some countries.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.