ArticleBMJ quality & safety2014
User-generated quality standards for youth mental health in primary care: a participatory research design using mixed methods.
Article in BMJ quality & safety, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Adolescents' involvement in mental health treatment and service design: a systematic review.BMC health services research · 2024Pooled it
- Youth engagement in mental health research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- User involvement in adolescents' mental healthcare: a systematic review.European child & adolescent psychiatry · 2022Pooled it
- Young peoples' involvement in welfare service development-Is voice enough?-A thematic synthesis of qualitative studies.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Conceptualising and operationalising 'patient and public involvement' (PPI) and 'responsible research and innovation' (RRI) in youth mental health research: a scoping review.Research involvement and engagement · 2026Review
- Where is Batho Pele? The perspective of child and adolescent mental health service users in the Western Cape Province of South Africa.BMC public health · 2025Article
- "When you're in the office, it means you managed to get somewhere": An interpretive descriptive study of the perceptions of adolescents accessing primary care for mental health services.Health care transitions · 2025Article
- Anything goes for participant, patient and public involvement in youth mental health research.JCPP advances · 2024Article
- Developing standards for virtual delivery of mental health services in Canadian primary care: A qualitative study and modified Delphi process.PLOS mental health · 2024Article
- Cross-cultural adaptation and validation of the Mental Health Quality of Life (MHQoL) questionnaire in a Chinese-speaking population with chronic musculoskeletal pain.BMC psychology · 2023Article
- Promoting Resilience and Well-being Through Co-design (The PRIDE Project): Protocol for the Development and Preliminary Evaluation of a Prototype Resilience-Based Intervention for Sexual and Gender Minority Youth.JMIR research protocols · 2022Article
- User participation and shared decision-making in adolescent mental healthcare: a qualitative study of healthcare professionals' perspectives.Child and adolescent psychiatry and mental health · 2020Article
- Performance Measurement in Mental Health and Addictions Systems: A Scoping Review.Journal of studies on alcohol and drugs. Supplement · 2019Article
- Focus Group in Community Mental Health Research: Need for Adaption.Community mental health journal · 2019Review
- Co-designing for quality: Creating a user-driven tool to improve quality in youth mental health services.Health expectations : an international journal of public participation in health care and health policy · 2018Article
- Naloxone and the Inner City Youth Experience (NICYE): a community-based participatory research study examining young people's perceptions of the BC take home naloxone program.Harm reduction journal · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo develop user-generated quality standards for young people with mental health problems in primary care using a participatory research model.
methods50 young people aged 16-25 from community settings and primary care participated in focus groups and interviews about their views and experiences of seeking help for mental health problems in primary care, cofacilitated by young service users and repeated to ensure respondent validation. A second group of young people also aged 16-25 who had sought help for any mental health problem from primary care or secondary care within the last 5 years were trained as focus groups cofacilitators (n=12) developed the quality standards from the qualitative data and participated in four nominal groups (n=28).
results46 quality standards were developed and ranked by young service users. Agreement was defined as 100% of scores within a two-point region. Group consensus existed for 16 quality standards representing the following aspects of primary care: better advertising and information (three); improved competence through mental health training and skill mix within the practice (two); alternatives to medication (three); improved referral protocol (three); and specific questions and reassurances (five). Alternatives to medication and specific questions and reassurances are aspects of quality which have not been previously reported.
conclusionsWe have demonstrated the feasibility of using participatory research methods in order to develop user-generated quality standards. The development of patient-generated quality standards may offer a more formal method of incorporating the views of service users into quality improvement initiatives. This method can be adapted for generating quality standards applicable to other patient groups.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.