ArticleJournal of genetic counseling2014
An internal performance assessment of CancerGene Connect: an electronic tool to streamline, measure and improve the genetic counseling process.
Article in Journal of genetic counseling, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Leveraging Health Information Technology to Collect Family Cancer History: A Systematic Review and Meta-Analysis.JCO clinical cancer informatics · 2021Pooled it
- Randomized control trial comparing genetic counseling service delivery models in an underserved population.Journal of genetic counseling · 2025Trial
- Assessing and attending to psychosocial concerns in genetic counseling: Proposing the BATHE method.Journal of genetic counseling · 2025Article
- Evaluating genetic counseling session duration: A scoping review of patient care time, influencing factors, and impact on patient outcomes.Journal of genetic counseling · 2025Article
- Feasibility of an electronic patient-facing cancer family history tool in medically underserved populations.Genetics in medicine open · 2024Article
- A novel mobile health application to support cancer surveillance needs of patients and families with cancer predisposition syndromes.Pediatric blood & cancer · 2023Article
- Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.Hereditary cancer in clinical practice · 2022Article
- Racial and Ethnic Disparities in Germline Genetic Testing of Patients With Young-Onset Colorectal Cancer.Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association · 2022Article
- Adapting genetic counseling operations amidst the COVID-19 pandemic.Journal of genetic counseling · 2021Article
- Family health history: underused for actionable risk assessment.Lancet (London, England) · 2019Review
- Validation of a digital identification tool for individuals at risk for hereditary cancer syndromes.Hereditary cancer in clinical practice · 2019Article
- What characterizes cancer family history collection tools? A critical literature review.Current oncology (Toronto, Ont.) · 2018Review
- Review and Comparison of Electronic Patient-Facing Family Health History Tools.Journal of genetic counseling · 2018Review
- Review
- Initial clinical validation of Health Heritage, a patient-facing tool for personal and family history collection and cancer risk assessment.Familial cancer · 2016Article
- Clinical and Counseling Experiences of Early Adopters of Whole Exome Sequencing.Journal of genetic counseling · 2016Article
- Prediction of Cancer Prevention: From Mammogram Screening to Identification of BRCA1/2 Mutation Carriers in Underserved Populations.EBioMedicine · 2015Article
- Implementation of a Population-Based Cancer Family History Screening Program for Lynch Syndrome.Cancer control : journal of the Moffitt Cancer CenterArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
CancerGene Connect (CGC) is a web-based program that combines the collection of family and medical history, cancer risk assessment, psychosocial assessment, report templates, a result tracking system, and a patient follow up system. The performance of CGC was assessed in several ways: pre-appointment completion data analyzed for demographic and health variables; a time study to assess overall time per case and to compare the data entry by the genetic counselor compared to the patient, and a measured quality assessment of the program via observation and interview of patients. Prior to their appointment, 52.3% of 2,414 patients completed the online patient questionnaire section of CGC. There were significant differences in completion rates among racial and ethnic groups. County hospital patients were less likely to complete the questionnaire than insured patients (p < 0.0001); and likewise uninsured patients and patients with Medicare/Medicaid were less likely to complete the questionnaire than private patients (p < 0.0001). The average genetic counseling time per case was 82 min, with no significant differences whether the counselor or the patient completed CGC. CGC reduces genetic counselor time by approximately 14-46% compared to average time per case using traditional risk assessment and documentation methods previously reported. All surveyed users felt the questionnaire was easy to understand. CGC is an effective tool that streamlines workflow, and provides a standardized data collection tool that can be used to evaluate and improve the genetic counseling process.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.