ArticleMaternal and child health journal2015
Assessing systems quality in a changing health care environment: the 2009-10 national survey of children with special health care needs.
Article in Maternal and child health journal, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Quality Indicators for High-Need Patients: a Systematic Review.Journal of general internal medicine · 2022Pooled it
- Novel Web-Based Technology to Promote Goal-Setting in Complex Chronic Illness: Randomized Controlled Trial.JMIR human factors · 2026Trial
- Adaptation of an Evidence-Based Diabetes Management Intervention for Delivery in Community Settings: Findings From a Pilot Randomized Effectiveness Trial.Journal of pediatric psychology · 2019Trial
- Brief Computer-Delivered Intervention to Increase Parental Monitoring in Families of African American Adolescents with Type 1 Diabetes: A Randomized Controlled Trial.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2017Trial
- Sex-based differences in transition readiness and health-related quality of life during the healthcare transition of youth with special health care needs.Clinics (Sao Paulo, Brazil) · 2026Article
- Medicaid unbroken: ensuring continuous United States public health insurance coverage for children to school age.Pediatric research · 2024Article
- Oral Health-related Quality of Life of Children with Special Health Care Needs in Riyadh: A Cross-sectional Study.Oral health & preventive dentistry · 2024Article
- Article
- The impact of social-environmental factors on IQ in syndromic intellectual developmental disabilities.Journal of clinical and translational science · 2024Review
- Article
- Intersectionality and Social Security Age-18 Redetermination: Reducing the Stress and Trauma of Transition for Black Transition-Age Youth with Disabilities.Child & adolescent social work journal : C & A · 2023Article
- Fathers' Experiences of Caring for a Child with a Chronic Illness: A Systematic Review.Children (Basel, Switzerland) · 2023Review
- Barriers and Facilitators to the Implementation of Family-Centered Technology in Complex Care: Feasibility Study.Journal of medical Internet research · 2022Article
- PICU Survivorship: Factors Affecting Feasibility and Cohort Retention in a Long-Term Outcomes Study.Children (Basel, Switzerland) · 2022Article
- Most Children With Medical Complexity Do Not Receive Care in Well-Functioning Health Care Systems.Hospital pediatrics · 2021Article
- Adjusting the family's life: A grounded theory of caring for children with special healthcare needs in rural areas, Thailand.PloS one · 2021Article
- Patterns of Health Insurance Discontinuity and Children's Access to Health Care.Maternal and child health journal · 2019Article
- Health Care System Factors Associated with Transition Preparation in Youth with Special Health Care Needs.Population health management · 2019Article
- Predictors of Coordinated and Comprehensive Care Within a Medical Home for Children With Special Healthcare (CHSCN) Needs.Frontiers in public health · 2018Article
- Shared Decision Making among Children with Medical Complexity: Results from a Population-Based Survey.The Journal of pediatrics · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
To provide a national, population-based assessment of the quality of the health care system for children and youth with special health care needs using a framework of six health care system quality indicators. 49,242 interviews with parents of children with special health care needs from the 2009-10 National Survey of Children with Special Health Care Needs (NS-CSHCN) were examined to determine the extent to which CSHCN had access to six quality indicators of a well-functioning system of services. Criteria for determining access to each indicator were established and applied to the survey data to estimate the proportion of CSHCN meeting each quality indicator by socio-demographic status and functional limitations. 17.6% of CSHCN received care consistent with all six quality indicators. Results for each component of the system quality framework ranged from a high of 70.3% of parents reporting that they shared decision-making with healthcare providers to a low of 40% of parents reporting receipt of services needed for transition to adult health care. Attainment rates were lower for CSHCN of minority racial and ethnic groups, those residing in households where English was not the primary language, those in lower income households, and those most impacted by their health condition. Only a small proportion of CSHCN receive all identified attributes of a high-quality system of services. Moreover, significant disparities exist whereby those most impacted by their conditions and those in traditionally disadvantaged groups are served least well by the current system. A small proportion of CSHCN appear to remain essentially outside of the system, having met few if any of the elements studied.
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