Evidence map›Paper›PMID 24905181›Full record

ArticleCancer medicine2014

African American women's perceptions of cancer clinical trials.

Lindsey Haynes-Maslow, Paul Godley, Lisa Dimartino, Brandolyn White, Janice Odom, Alan Richmond, William Carpenter

Open access · goldAbstract read
In one paragraph

Article in Cancer medicine, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
28citing papers in PubMed, 4 pooled it
3.2field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

28 citing papers in PubMed, 4 syntheses or guidelines pooled it, 44 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 2 countries.

Lindsey Haynes-MaslowHealth Policy and Management, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
Paul Godley
Lisa Dimartino
Brandolyn White
Janice Odom
Alan Richmond
William Carpenter
University of North Carolina at Chapel Hill · USDurham University · GBUNC Lineberger Comprehensive Cancer CenterUniversity of North Carolina Health Care · US

Funding

Training ProgramU54CA153602 · NCI · UNIV OF NORTH CAROLINA CHAPEL HILL · PI GODLEY, PAUL A. · 2010 to 2015
$5.4M
NCI NIH HHS 3U54CA153602NCI NIH HHS U54 CA153602
6 · The paper itself

Abstract

Cancer clinical trials are important for resolving cancer health disparities for several reasons; however, clinical trial participation among African Americans is significantly lower than Caucasians. This study engaged focus groups of 82 female African American cancer survivors or cancer caregivers, including those in better resourced, more urban areas and less resourced, more rural areas. Informed by an integrated conceptual model, the focus groups examined perceptions of cancer clinical trials and identified leverage points that future interventions may use to improve enrollment rates. Study findings highlight variation in community knowledge regarding cancer clinical trials, and the importance of community education regarding clinical trials and overcoming historical stigma associated with clinical research specifically and the health care system more generally. Study participants commented on the centrality of churches in their communities, and thus the promise of the church as loci of such education. Findings also suggested the value of informed community leaders as community information sources, including community members who have a previous diagnosis of cancer and clinical trial experience. The sample size and location of the focus groups may limit the generalizability of the results. Since the women in the focus groups were either cancer survivors or caregivers, they may have different experiences than nonparticipants who lack the close connection with cancer. Trust in the health system and in one's physician was seen as important factors associated with patient willingness to enroll in clinical trials, and participants suggested that physicians who were compassionate and who engaged and educated their patients would build important trust requisite for patient participation in clinical trials.

Indexed as

Clinical Trials as TopicHealth Knowledge, Attitudes, PracticePerceptionBiomedical ResearchBlack or African AmericanCaregiversFemaleFocus GroupsHumansMiddle AgedModels, TheoreticalNeoplasmsRisk FactorsSurvivorsTrustAfrican Americanscancerclinical researchracial disparitiesrecruitment

Identifiers

PMID24905181
PMCPMC4302693
OpenAlexW2003192634

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.