ArticleJournal of palliative medicine2014
Why is high-quality research on palliative care so hard to do? Barriers to improved research from a survey of palliative care researchers.
Article in Journal of palliative medicine, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 33 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Feasibility Study of Adjunctive Bright Light Therapy (BLT) for Amelioration of Fatigue in Chinese Cancer Patients Admitted to a Palliative Care Unit
Participating in Palliative Care Research
Who cites it
33 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis.Palliative medicine · 2020Pooled it
- Use and Meaning of "Goals of Care" in the Healthcare Literature: a Systematic Review and Qualitative Discourse Analysis.Journal of general internal medicine · 2020Pooled it
- Multicomponent Palliative Care Interventions in Advanced Chronic Diseases: A Systematic Review.The American journal of hospice & palliative care · 2018Pooled it
- Assessment of the wish to hasten death in patients with advanced disease: A systematic review of measurement instruments.Palliative medicine · 2017Pooled it
- Clinical trials in palliative care: a systematic review of their methodological characteristics and of the quality of their reporting.BMC palliative care · 2017Pooled it
- A randomized controlled clinical trial of intranasal versus subcutaneous midazolam for agitation in terminal illness (MinTU study).Palliative medicine · 2026Trial
- Methylphenidate versus placebo for fatigue in patients with advanced cancer: the MePFAC randomised controlled trial.Health technology assessment (Winchester, England) · 2025Trial
- Methylphenidate Versus Placebo for Treating Fatigue in Patients With Advanced Cancer: Randomized, Double-Blind, Multicenter, Placebo-Controlled Trial.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2024Trial
- The Relationship of Post-traumatic Stress Disorder to End-of-life Care Received by Dying Veterans: a Secondary Data Analysis.Journal of general internal medicine · 2020Trial
- The influence of contextual factors on the sustainability of the family talk intervention after implementation when a parent of children or youths has a life-threatening illness.Palliative & supportive care · 2025Article
- Top Ten Tips Palliative Care Clinicians Should Know About Interpreting a Clinical Trial.Journal of palliative medicine · 2025Article
- Conducting Research in Palliative Care as Viewed by Interprofessional Care Teams: Insights from a Cross-Sectional Survey.Palliative medicine reports · 2025Article
- Psychological interventions for emotional well-being in adults with advanced progressive life-limiting illness.The Cochrane database of systematic reviews · 2024Article
- Inequities in access to palliative and end-of-life care in the black population in Canada: a scoping review.International journal for equity in health · 2024Article
- Pharmacological Treatment for Terminal Agitation, Delirium and Anxiety in Frail Older Patients.Geriatrics (Basel, Switzerland) · 2024Review
- Indian Society of Critical Care Medicine and Indian Association of Palliative Care Expert Consensus and Position Statements for End-of-life and Palliative Care in the Intensive Care Unit.Indian journal of critical care medicine : peer-reviewed, official publication of Indian Society of Critical Care Medicine · 2024Article
- The Duality of "Goals of Care" Language: A Qualitative Focus Group Study With Frontline Clinicians.Journal of pain and symptom management · 2023Article
- Challenges to delivering evidence-based palliative medicine.Clinical medicine (London, England) · 2023Review
- Beyond the Fight: Why President Biden's Cancer Moonshot Must Include Palliative Care.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2023Article
- Evaluation of a Study Protocol of the Application of Humor Interventions in Palliative Care Through a First Pilot Study.Palliative medicine reports · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSubstantial agreement has been achieved on research priorities in palliative care over the past 15 years, as evidenced by consensus conferences and systematic reviews. Despite the presence of a widely endorsed research agenda, however, addressing the gaps in scientific knowledge has progressed slowly, suggesting that researchers face significant obstacles to conducting high-quality research on the most pressing topics in the field.
objectiveTo systematically identify barriers to improved and expanded palliative care research as reported by researchers.
designSemistructured telephone interviews to solicit barriers to research in palliative care. SETTING/SUBJECTS: A purposive, interdisciplinary sample of 61 leading researchers in palliative care. MEASUREMENTS: Interviews were transcribed and analyzed using standard qualitative methods.
resultsRespondents named five barriers impeding progress: (1) funding, (2) institutional capacity, (3) researcher workforce, (4) challenges related to the topic and population (e.g., attrition, heightened human subjects protections), and (5) public and professional misunderstanding of palliative care and aversion to topics related to serious illness and end-of-life.
conclusionsResearch in palliative care is being held back by significant barriers that require the attention of institutions and funders. The consensus within the interdisciplinary sample indicates that concentrated effort to address barriers related to funding and researcher workforce could facilitate progress on established research priorities. More research is needed on viable strategies for overcoming the identified barriers.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.