Observational studyBMC pulmonary medicine2014
Assessment of stigma in patients with cystic fibrosis.
Observational study in BMC pulmonary medicine, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 14 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 3 syntheses or guidelines pooled it, 27 citations in OpenAlex.
- Discrimination against adolescents with chronic diseases: a systematic review.European journal of pediatrics · 2024Pooled it
- The measurement properties of tests and tools used in cystic fibrosis studies: a systematic review.European respiratory review : an official journal of the European Respiratory Society · 2021Pooled it
- Stigma-related experiences in non-communicable respiratory diseases: A systematic review.Chronic respiratory disease · 2017Pooled it
- The Impact of Personal-Level Social Networks on Treatment Adherence, Depression, Anxiety, and Perceived Stigma Among Adults with Cystic Fibrosis: An Egocentric Network Analysis.International journal of behavioral medicine · 2026Article
- Psychosocial Aspects of Cystic Fibrosis: A Mixed-Methods Systematic Review.Healthcare (Basel, Switzerland) · 2026Review
- Translation, cross-cultural adaptation, and evaluation of psychometric properties of the cystic fibrosis stigma scale.Scientific reports · 2025Article
- A qualitative exploration of the experience of individual-level stigma among adolescents with a chronic illness.PloS one · 2025Article
- Work participation in adults with rare genetic diseases - a scoping review.BMC public health · 2023Article
- Clearing up the smoke: Physical and mental health considerations regarding cannabis use in adolescents with cystic fibrosis.Pediatric pulmonology · 2023Review
- Stigma from medication use: an under recognised burden of care.Breathe (Sheffield, England) · 2021Review
- Correction to: Assessment of stigma in patients with cystic fibrosis.BMC pulmonary medicine · 2020Article
- The Use of Online Health Forums by Patients With Chronic Cough: Qualitative Study.Journal of medical Internet research · 2018Article
- A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis.PloS one · 2015Article
- Cough in adolescent with cystic fibrosis, from nightmare to COVID-19 stigma: A qualitative thematic analysis.Journal of pediatric nursingArticle
Corrections and comments
- Erratum issued
Authors and funding
9 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundResearch that explores stigma in Cystic Fibrosis (CF) is limited. Productive cough, repeated lung infections, and periods of serious illness requiring hospitalizations are among common symptoms of CF. These symptoms may cause a negative perception by others. We developed a CF-specific Stigma Scale and tested its psychometric properties.
methodsWe conducted a focus group with 11 participants including adult patients with CF (n = 5) and their informal caregivers (n = 6). The thematic content of the focus group was analyzed to find key themes. We developed a CF-specific Stigma Scale and assessed its psychometric properties in a 3-month prospective cohort study of adult CF outpatients (n = 45).
resultsStigma emerged as consistent concern for people living and caring for those with CF, affecting both patients' lives and health through the focus group. Using the newly developed CF Stigma scale, the mean baseline score was 16.6 (SD = 4.5, Range = 10-25). The CF Stigma Scale demonstrated robust psychometric properties: 1) Internal consistency: α = 0.79; 2) Mean inter-item correlation: 0.30 with good test-retest reliability; 3) Convergent validity: Positive associations with depression, severity of CF symptoms and anxiety; negative associations with validated quality of life scores were observed.
conclusionsStigma is measurable and significantly impacts the lives of CF patients. Further research should investigate the role of stigma in patients living with CF.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.