ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2015
Strategies for enrollment of African Americans into cancer genetic studies.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed.
- Engaging migrants and immigrants in genetics research.Nature genetics · 2025Review
- Scoping Review of Barriers and Facilitators to Recruitment of Black People With Cancer in Biospecimen-Based Research.JCO precision oncology · 2024Article
- Breast Cancer Germline Genetic Counseling and Testing for Populations of African Heritage Globally: A Scoping Review on Research, Practice, and Bioethical Considerations.JCO global oncology · 2023Article
- Lessons Learned from the Pilot Phase of a Population-Wide Genomic Screening Program: Building the Base to Reach a Diverse Cohort of 100,000 Participants.Journal of personalized medicine · 2022Article
- Hereditary variants of unknown significance in African American women with breast cancer.PloS one · 2022Article
- A scoping review of social and behavioral science research to translate genomic discoveries into population health impact.Translational behavioral medicine · 2021Article
- Increased ease of access to genetic counseling for low-income women with breast cancer using a point of care screening tool.Journal of community genetics · 2021Article
- Engaging community stakeholders in research on best practices for clinical genomic sequencing.Personalized medicine · 2020Article
- Serum exosomal-annexin A2 is associated with African-American triple-negative breast cancer and promotes angiogenesis.Breast cancer research : BCR · 2020Article
- Why African Americans say "No": A Study of Pharmacogenomic Research Participation.Ethnicity & disease · 2020Article
- Attitudes and experiences regarding genetic research among persons of African descent.Journal of community genetics · 2020Article
- Factors associated with willingness to provide biospecimens for genetics research among African American cancer survivors.Journal of community genetics · 2019Article
- Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium.Journal of genetic counseling · 2018Article
- Demographic differences in willingness to provide broad and narrow consent for biobank research.Biopreservation and biobanking · 2015Article
- The power of representation: Statistical analysis of diversity in US Alzheimer's disease genetics data.Alzheimer's & dementia (New York, N. Y.)Article
- Equity and Inclusion in Assessing Hereditary Cancer Risk: Insights From Excluded Communities, Structured Interviews, and Population Genetics.Cancer control : journal of the Moffitt Cancer CenterReview
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Authors and funding
3 authors.
Funding
Abstract
The enrollment of ethnically diverse populations in genetic and genomic research is vital to the parity of benefits resulting from research with biological specimens. Herein, we discuss strategies that may effectively improve the recruitment of African Americans into genetics studies. Specifically, we show that engaging physicians, genetic counselors, and community members is essential to enrolling participants into genetic studies. We demonstrate the impact of utilizing African American genetic counselors on study enrollment rates and implementing a two-page consent form that improved on a lengthy and inefficient consenting process. Lastly, we provided participants with the option of donating saliva instead of blood for study purposes. Descriptive statistics were used. Using the aforementioned strategies, recruitment goals for the Genetic Basis of Breast Cancer Subtype Study at Howard University (HU) were met. Our overall results yielded 182 participants in 18 months. Recruitment strategies that involve the engagement of physicians, genetic counselors, and community members may help researchers increase the enrollment of ethnically diverse and hard-to-reach participants into genetic studies.
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Registered trials
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