Evidence map›Paper›PMID 24850089›Full record

ArticleBiopreservation and biobanking2013

Public perspectives on biospecimen procurement: what biorepositories should consider.

Jamie L'Heureux, Jeffrey C Murray, Elizabeth Newbury, Laura Shinkunas, Christian M Simon

Abstract read
In one paragraph

Article in Biopreservation and biobanking, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Interactive multimedia consent for biobanking: a randomized trial.Genetics in medicine : official journal of the American College of Medical Genetics · 2016
    Trial
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jamie L'Heureux1 Department of 1Pediatrics, Carver College of Medicine, The University of Iowa , Iowa City, Iowa.
Jeffrey C Murray
Elizabeth Newbury
Laura Shinkunas
Christian M Simon

Funding

UNIVERSITY OF IOWA CTSA FOR PEDIATRIC RESEARCHUL1RR024979 · NCRR · UNIVERSITY OF IOWA · PI ROSENTHAL, GARY E · 2007 to 2011
$31.8M
FaceBase Management and Coordination HubU01DE020057 · NIDCR · UNIVERSITY OF IOWA · PI MARAZITA, MARY L., MURRAY, JEFFREY C · 2009 to 2014
$8.9M
NCRR NIH HHS UL1RR024979NIDCR NIH HHS U01 DE020057
6 · The paper itself

Abstract

purposeHuman biospecimens are central to biobanking efforts, yet how members of the public think about biobank procurement strategies is not well understood. This study aimed to explore public perspectives toward the procurement of residual clinical material versus "direct" procurement strategies such as the drawing of blood.

methodsMembers of the public residing in and beyond the biobank catchment area of the University of Iowa Hospitals and Clinics were randomly selected to participate in focus groups and a telephone survey.

resultsThe majority of survey participants (75%, n=559) found both residual and direct procurement strategies equally workable. Small proportions preferred either residual (15%; n=117) or direct (5%; n=40) procurement. Focus group participants (n=48) could identify benefits to both procurement strategies, but raised concerns about possible donor inconvenience/discomfort and reduced biospecimen accrual in the case of direct procurement. Residual procurement raised concerns about lower-quality samples being procured without full donor awareness.

conclusionBiobanks should consider that members of the public in their research programs may be willing to make specimen donations regardless of whether a residual or direct procurement strategy is employed. Limiting patient discomfort and inconvenience may make direct procurement strategies more acceptable to some members of the public. Ensuring donor awareness through effective informed consent may allay public concerns about the indirectness of donating clinical biospecimens.

Indexed as

Biological Specimen BanksTranslational Research, BiomedicalAdolescentAdultAgedAged, 80 and overData CollectionFemaleFocus GroupsHospitalsHumansIowaMaleMiddle AgedPublic OpinionTissue Donors

Identifiers

PMID24850089
PMCPMC4076971

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.