Trial reportJournal of clinical epidemiology2014
The agreement between proxy and self-completed EQ-5D for care home residents was better for index scores than individual domains.
Trial report in Journal of clinical epidemiology, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review of instruments for measuring outcomes in economic evaluation within aged care.Health and quality of life outcomes · 2015Pooled it
- Proxy reports on the EQ-5D-5L in residential aged care facilities: a validation study.Health and quality of life outcomes · 2026Trial
- A multidomain decision support tool to prevent falls in older people: the FinCH cluster RCT.Health technology assessment (Winchester, England) · 2022Trial
- An intervention to increase physical activity in care home residents: results of a cluster-randomised, controlled feasibility trial (the REACH trial).Age and ageing · 2021Trial
- Measurement properties of EQ-5D-3L and EQ-5D-5L in recording self-reported health status in older patients with substantial multimorbidity and polypharmacy.Health and quality of life outcomes · 2020Trial
- Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial.BMC medicine · 2020Trial
- A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT.Health technology assessment (Winchester, England) · 2020Trial
- Trial
- Cost-effectiveness of a community-based dementia support model: evidence from a real-world economic evaluation.Cost effectiveness and resource allocation : C/E · 2026Article
- Observational
- Comparison of quality of life of older adults living in foster families versus nursing homes. Results from the KASA studies.The journal of nutrition, health & aging · 2024Article
- EQ-5D-5L in Schizophrenia: differences between patients and nurses' reports.Health and quality of life outcomes · 2021Article
- Trans-sacral bar osteosynthesis provides low mortality and high mobility in patients with fragility fractures of the pelvis.Scientific reports · 2021Article
- Does performance-based remuneration improve outcomes in the treatment of hip fracture?The bone & joint journal · 2021Observational
- Discrepancies between proxy estimates and patient reported, health related, quality of life: minding the gap between patient and clinician perceptions in heart failure.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Feasibility and validity of EQ-5D-5L proxy by nurses in measuring health-related quality of life of nursing home residents.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- How are you doing in the eyes of your spouse? Level of agreement between the self-completed EQ-5D-5L and two proxy perspectives in an orthopaedic population: a randomized agreement study.Health and quality of life outcomes · 2021Article
- Baseline quality of life in people with hip fracture: results from the multicentre WHiTE cohort study.Bone & joint research · 2020Article
- Assessing the proxy response bias of EQ-5D-3 L in general population: a study based on a large-scale representative household health survey using propensity score matching.Health and quality of life outcomes · 2020Article
- Improved RIDIT statistic approach provides more intuitive and informative interpretation of EQ-5D data.Health and quality of life outcomes · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
objectiveProxy measures are an alternative source of data for care home residents who are unable to complete the health utility measure, but the agreement levels between residents and care home staff for the EQ-5D have not been investigated previously. The objective of the present study was to examine the inter-rater agreement levels for the reporting of EQ-5D by care home residents and staff, adjusting for the impact of clustering. STUDY DESIGN AND
settingThe data consist of EQ-5D scores for 565 pairs of care home residents and proxies and quality-adjusted life-years (QALYs) for 248 pairs. Cluster-adjusted agreement was compared for the domains, index scores, and QALYs from the EQ-5D. Factors influencing index score agreement are also described.
resultsThe results show poor to fair agreement at the domain level (cluster-adjusted Kappa -0.03 to 0.26) and moderate agreement at the score level (cluster-adjusted intra-class correlation coefficient [ICC] 0.44-0.50) and for QALYs (cluster-adjusted ICC 0.59). A higher likelihood of depression and lower cognitive impairment were both associated with smaller discrepancy between proxy and self-completed scores.
conclusionProxies appear to be an acceptable source of data for index scores and QALYs but may be less reliable if individual domains are considered.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.