Evidence map›Paper›PMID 24823955›Full record

ArticleCirculation. Cardiovascular quality and outcomes2014

Choices for patients "without a choice": Interviews with patients who received a left ventricular assist device as destination therapy.

Abigale L Ottenberg, Katlyn E Cook, Rachel J Topazian, Luke A Mueller, Paul S Mueller, Keith M Swetz

Abstract read
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In one paragraph

Article in Circulation. Cardiovascular quality and outcomes, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Article
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  8. Assessment of patients' and caregivers' informational and decisional needs for left ventricular assist device placement: Implications for informed consent and shared decision-making.The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation · 2015
    Article
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors.

Abigale L OttenbergFrom the Program in Professionalism and Ethics (A.L.O., K.E.C., P.S.M.) and Division of General Internal Medicine (K.E.C., R.J.T., L.A.M., P.S.M., K.M.S.), Mayo Clinic, Rochester, MN.
Katlyn E CookFrom the Program in Professionalism and Ethics (A.L.O., K.E.C., P.S.M.) and Division of General Internal Medicine (K.E.C., R.J.T., L.A.M., P.S.M., K.M.S.), Mayo Clinic, Rochester, MN.
Rachel J TopazianFrom the Program in Professionalism and Ethics (A.L.O., K.E.C., P.S.M.) and Division of General Internal Medicine (K.E.C., R.J.T., L.A.M., P.S.M., K.M.S.), Mayo Clinic, Rochester, MN.
Luke A MuellerFrom the Program in Professionalism and Ethics (A.L.O., K.E.C., P.S.M.) and Division of General Internal Medicine (K.E.C., R.J.T., L.A.M., P.S.M., K.M.S.), Mayo Clinic, Rochester, MN.
Paul S MuellerFrom the Program in Professionalism and Ethics (A.L.O., K.E.C., P.S.M.) and Division of General Internal Medicine (K.E.C., R.J.T., L.A.M., P.S.M., K.M.S.), Mayo Clinic, Rochester, MN.
Keith M SwetzFrom the Program in Professionalism and Ethics (A.L.O., K.E.C., P.S.M.) and Division of General Internal Medicine (K.E.C., R.J.T., L.A.M., P.S.M., K.M.S.), Mayo Clinic, Rochester, MN. swetz.keith@mayo.edu.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatients undergo major physical and psychological changes after implantation of a left ventricular assist device as destination therapy (DT). We sought to qualitatively study outcomes and attitudes of patients after DT. METHODS AND

resultsAmbulatory outpatients with DT at our institution were invited to be interviewed between June and August 2011. In-person interviews were audio-recorded, transcribed, and analyzed qualitatively using thematic analysis. The study included 12 patients (11 men) from the Midwestern United States with a median age of 71.5 years (range, 33-78 years). Interviews were conducted at a median (range) time of 1.37 (0.43-5.04) years after DT implantation. Most patients were white (n=11), married (n=10), and Christian (n=10). We identified 6 themes commonly discussed by the interviewees: preparedness planning, new lease on life, optimizing support networks, systemic limitations, reflections on time, and communication matters. Analysis revealed that most patients saw DT as their only choice, despite other alternatives.

conclusionsAmbulatory patients reported varied experiences after DT but commonly reported gratitude for improved functional status and a perception of improved symptom burden. Recommendations for improving post-DT care include developing patient support systems, systematizing education for community providers, and expanding respite services.

Indexed as

Prosthesis ImplantationAdultAgedFemaleHeart-Assist DevicesHumansInterviews as TopicMaleMiddle AgedPerceptionQuality of LifeRetrospective StudiesTreatment OutcomeUnited StatesVentricular Dysfunction, Leftadvance care planningdecision making, sharedethics, medicalheart-assist devicespalliative care

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.