Evidence map›Paper›PMID 24819082›Full record

ArticleJournal of pain and symptom management2014

Family perceptions of quality of hospice care in the nursing home.

Deborah Hwang, Joan M Teno, Melissa Clark, Renée Shield, Cindy Williams, David Casarett, Carol Spence

Open access · bronzeAbstract readMulticenter Study
In one paragraph

Article in Journal of pain and symptom management, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
2.2field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 18 citations in OpenAlex.

  1. Quality Hospice Care in Adult Family Homes: Barriers and Facilitators.Journal of the American Medical Directors Association · 2018
    Trial
  2. Article
  3. Article
  4. Article
  5. Article
  6. Hospice Care Experiences Among Decedents With Huntington's Disease.Journal of pain and symptom management · 2022
    Article
  7. Family Members' Experience With Hospice in Nursing Homes.The American journal of hospice & palliative care · 2016
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Deborah HwangBrown University Providence, Rhode Island, USA.
Joan M TenoBrown University Providence, Rhode Island, USA. Electronic address: jmteno76@mac.com.
Melissa ClarkBrown University Providence, Rhode Island, USA.
Renée ShieldBrown University Providence, Rhode Island, USA.
Cindy WilliamsBrown University Providence, Rhode Island, USA.
David CasarettUniversity of Pennsylvania, Philadelphia, Pennsylvania, USA.
Carol SpenceNational Hospice and Palliative Care Organization, Alexandria, Virginia, USA.
Brown University · USNational Hospice and Palliative Care Organization · USUniversity of Pennsylvania · US

Funding

Family Evaluation of Hospice CareR01HS019675 · AHRQ · BROWN UNIVERSITY · PI TENO, JOAN M · 2010 to 2012
$1.1M
AHRQ HHS 1R01HS019675AHRQ HHS R01 HS019675
6 · The paper itself

Abstract

contextNursing homes (NHs) are increasingly the site of hospice care. High quality of care is dependent on successful NH-hospice collaboration.

objectivesTo examine bereaved family members' perceptions of NH-hospice collaborations in terms of what they believe went well or could have been improved.

methodsFocus groups were conducted with bereaved family members from five diverse geographic regions, and included participants from inner city and rural settings, with oversampling of African Americans.

resultsA total of 28 participants (14.8% African American, mean age 61.4 years) identified three major aspects of collaboration as important to care delivery. First, most (67.9%) voiced concerns with knowing who (NH or hospice) is responsible for which aspects of patient care. Second, nearly half (42.9%) stated concern about information coordination between the NH and hospice. Finally, 67.9% of the participants mentioned the need for hospice to advocate for high-quality care rather than their having to directly do so on behalf of their family members.

conclusionThe important concerns raised by bereaved family members about NH-hospice collaboration have been incorporated into the revised Family Evaluation of Hospice Care, a post-death survey used to evaluate quality of hospice care.

Indexed as

Nursing HomesQuality of Health CareBlack or African AmericanFamilyFemaleFocus GroupsHealth Information ExchangeHospice CareHumansMaleMiddle AgedPatient AdvocacyPerceptionfamily perceptionHospicenursing homequality care

Identifiers

PMID24819082
PMCPMC7053228
OpenAlexW2091370311

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.