Observational studyPediatric transplantation2014
Transition from hospital to home following pediatric solid organ transplant: qualitative findings of parent experience.
Observational study in Pediatric transplantation, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Risk factors associated with 31-day unplanned hospital readmission in newborns: a systematic review.European journal of pediatrics · 2023Pooled it
- Psychosocial outcomes in pediatric patients with ventricular assist devices and their families: A systematic review.Pediatric transplantation · 2021Pooled it
- Information Seeking and Engagement on Social Media Among Pediatric Solid Organ Transplant Recipients and Their Families.Pediatric transplantation · 2026Article
- Supporting discharge preparation for children with medical complexity: a scoping review.BMC nursing · 2025Article
- Caring Readiness Among Parents of Children Who Have Undergone Liver Transplantation and Are Transitioning From the Intensive Care Unit: A Cross-Sectional Study.Journal of clinical nursing · 2025Article
- Patient and family caregiver adaptation during hospital-home transition: a concept analysis.Revista da Escola de Enfermagem da U S P · 2025Article
- Characterizing the Experiences and Educational Needs of Patients and Caregivers During the Kidney Transplant Process.Canadian journal of kidney health and disease · 2025Article
- Feasibility and Acceptability of a mHealth Self-Management Intervention for Pediatric Transplant Families.Western journal of nursing research · 2022Article
- One Size Does Not Fit All: Discharge Teaching and Child Challenging Behaviors.Western journal of nursing research · 2022Article
- Acceptability of an mHealth Family Self-management Intervention (myFAMI) for Pediatric Transplantation Families: Qualitative Focus.JMIR nursing · 2022Article
- Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation.Children (Basel, Switzerland) · 2021Article
- Pilot study protocol of a mHealth self-management intervention for family members of pediatric transplant recipients.Research in nursing & health · 2020Article
- Socioeconomic status influences the toll paediatric hospitalisations take on families: a qualitative study.BMJ quality & safety · 2017Article
- Pediatric solid organ transplant recipients: transition to home and chronic illness care.Pediatric transplantation · 2015Observational
- Using the Engaging Parents in Education for Discharge (ePED) iPad Application to Improve Parent Discharge Experience.Journal of pediatric nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
Transplant providers are challenged to determine appropriate interventions for patients and families due to limited published research regarding the context of the post-discharge experience from the perspective of parents of transplanted children. The purpose of this study is to describe the parent perspective of the transition from hospital to home following their child's solid organ transplant. Within a mixed-methods design, 37 parents of pediatric heart, kidney, and liver transplant recipients from three pediatric hospitals responded to qualitative interview questions on the day of hospital discharge and three wk following hospital discharge. Insight to the discharge preparation process revealed necessary education components. Post-discharge themes were identified for coping, knowledge, and adherence. The parents' responses provide awareness as to specific stressors and concerns parents are faced with when their child is discharged from the hospital after solid organ transplant and opportunities for ways the transplant team can provide support.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.