ArticleThe American journal of bioethics : AJOB2014
Patient and citizen participation in health: the need for improved ethical support.
Article in The American journal of bioethics : AJOB, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed.
- A Co-production Evaluation Tool Informed by Co-production Workshops for Use in Evidence Synthesis Contexts.Cochrane evidence synthesis and methods · 2026Article
- Patient and public involvement in research: a survey on experience, opinions and training needs of gynecologic oncologists in two collaborative groups in Italy.Research involvement and engagement · 2025Article
- Evaluating the Added Value of Digital Contact Tracing Support Tools for Citizens: Framework Development.JMIR research protocols · 2023Article
- Supporting One Health for Pandemic Prevention: The Need for Ethical Innovation.Journal of bioethical inquiry · 2023Article
- Democratic Justifications for Patient Public Involvement and Engagement in Health Research: An Exploration of the Theoretical Debates and Practical Challenges.The Journal of medicine and philosophy · 2023Article
- Occupational resource profiles for an addressee orientation in occupational health management: a segmentation analysis.Frontiers in psychology · 2023Article
- Citizen engagement in healthcare procurement decision-making by healthcare insurers: recent experiences in the Netherlands.Health research policy and systems · 2022Article
- Engagement of older adults in regional health innovation: The ECOTECH concept mapping project.SAGE open medicine · 2022Article
- Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review.Research involvement and engagement · 2021Review
- The Oncology Family Forum: Collaborating With Families to Codesign Pediatric Oncology Services.Journal of patient experience · 2020Article
- Creating an ethical culture to support recovery from substance use disorders.Journal of medical ethics · 2020Article
- 'Spending the day with your Family Health Team': rapid ethnography of a patient-centred quality improvement event.BJGP open · 2020Article
- Engaging Patients and Other Non-Researchers in Health Research: Defining Research Engagement.Journal of general internal medicine · 2020Article
- Patient and public involvement: Two sides of the same coin or different coins altogether?Bioethics · 2019Article
- The Right to Accessible and Acceptable Healthcare Services. Negotiating Rules and Solutions With Members of Ethnocultural Minorities.Journal of bioethical inquiry · 2019Article
- Respect, trust and continuity: A qualitative study exploring service users' experience of involvement at a Healthy Life Centre in Norway.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- What deserves our respect? Reexamination of respect for autonomy in the context of the management of chronic conditions.Medicine, health care, and philosophy · 2019Article
- Medium-Range Narratives as a Complementary Tool to Principle-Based Prioritization in Sweden: Test Case "ADHD".Journal of bioethical inquiry · 2019Article
- Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals.International journal of qualitative studies on health and well-being · 2018Article
- Addressing vaccine hesitancy requires an ethically consistent health strategy.BMC medical ethics · 2018Article
Corrections and comments
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
Authors and funding
1 author.
Funding
Abstract
Patient and citizen participation is now regarded as central to the promotion of sustainable health and health care. Involvement efforts create and encounter many diverse ethical challenges that have the potential to enhance or undermine their success. This article examines different expressions of patient and citizen participation and the support health ethics offers. It is contended that despite its prominence and the link between patient empowerment and autonomy, traditional bioethics is insufficient to guide participation efforts. In addition, the turn to a "social paradigm" of ethics in examinations of biotechnologies and public health does not provide an account of values that is commensurable with the pervasive autonomy paradigm. This exacerbates rather than eases tensions for patients and citizens endeavoring to engage with health. Citizen and patient participation must have a significant influence on the way we do health ethics if its potential is to be fulfilled.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.