ArticleEpilepsy research and treatment2014
Caregiver burden in epilepsy: determinants and impact.
Article in Epilepsy research and treatment, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
39 citing papers in PubMed.
- Quality of Life and Associated Factors in Primary Caregivers of Children with Refractory Epilepsy on Long-Term Ketogenic Diet: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2026Article
- What does it mean to live with epilepsy? Burden of illness from the patient perspective.Epilepsia open · 2026Article
- A qualitative exploration of patient experiences living with autoimmune encephalitis.Scientific reports · 2026Article
- Affective and Cognitive Vulnerability Under Chronic Stress: Insights From Patients With Left Temporal Lobe Epilepsy and Caregivers.Actas espanolas de psiquiatria · 2026Article
- Caregiver Burden and Well-being of Caregivers to Hospitalized Filipino Children with Neurological Conditions: A Cross-sectional Study.Acta medica Philippina · 2026Article
- Article
- Caregiver burden and healthcare providers perspectives in epilepsy: An observational study in China, Taiwan, and Argentina.Epilepsy & behavior reports · 2025Article
- Review
- Caregiver burden and familial impact in Down Syndrome Regression Disorder.Orphanet journal of rare diseases · 2025Article
- Caregiver burden associated with caring for individuals with tuberous sclerosis complex-associated seizures: A descriptive, non-interventional survey in Sweden.Epilepsy & behavior reports · 2025Article
- Prevalence, severity, frequency and healthcare resource use of epilepsy among individuals with Rett Syndrome: analysis of data from a Rett Center of Excellence.Frontiers in neurology · 2025Article
- Qualitative Analysis of Decision to Pursue Electrical Brain Stimulation by Patients With Drug-Resistant Epilepsy and Their Caregivers.Neurology. Clinical practice · 2024Article
- Disparities in pediatric drug-resistant epilepsy care.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Article
- Stress Response Analysis via Dynamic Entropy in EEG: Caregivers in View.International journal of environmental research and public health · 2023Article
- The effect of responsive neurostimulation (RNS) on neuropsychiatric and psychosocial outcomes in drug-resistant epilepsy.Epilepsy & behavior : E&B · 2023Article
- Caregiver burden and COVID-19: How epilepsy caregivers experienced the pandemic.Epilepsy & behavior : E&B · 2023Article
- Article
- A framework for health equity in people living with epilepsy.Epilepsy research · 2022Review
- Correlates of Caregiving Burden among Bedouin-Muslim Mothers of Children Diagnosed with Epilepsy.International journal of environmental research and public health · 2022Article
- The burden of epilepsy and unmet need in people with focal seizures.Brain and behavior · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Aim. Caregiver burden (CB) in epilepsy constitutes an understudied area. Here we attempt to identify the magnitude of this burden, the factors associated with it, and its impact to caregiver quality of life (QOL). Methods. 48 persons with epilepsy (PWE) underwent video-EEG monitoring and their caregivers completed questionnaires providing demographic, disease-related, psychiatric, cognitive, sleep, QOL, and burden information. Results. On regression analysis, higher number of antiepileptic drugs, poorer patient neuropsychological performance, lower patient QOL score, and lower caregiver education level were associated with higher CB. Time allocated to patient care approximated but did not attain statistical significance. A moderate inverse correlation between CB and caregiver QOL physical component summary score and a stronger inverse correlation between CB and caregiver QOL mental component summary score were seen. Conclusion. In a selected cohort of PWE undergoing video-EEG monitoring, we identified modest degree of CB, comparable to that reported in the literature for other chronic neurological conditions. It is associated with specific patient and caregiver characteristics and has a negative effect on caregiver QOL.
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.