Evidence map›Paper›PMID 24767783›Full record

ArticleAcademic pediatrics

Latino parents' perspectives on barriers to autism diagnosis.

Katharine E Zuckerman, Brianna Sinche, Angie Mejia, Martiza Cobian, Thomas Becker, Christina Nicolaidis

Abstract read
In one paragraph

Article in Academic pediatrics. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 119 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
119citing papers in PubMed, 6 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

119 citing papers in PubMed, 6 syntheses or guidelines pooled it.

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  6. A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe.Autism research : official journal of the International Society for Autism Research · 2020
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  16. Integrating Stakeholder Voices to Improve Occupational Therapy Research for Minoritized Autistic Hispanic and Latino Communities.The American journal of occupational therapy : official publication of the American Occupational Therapy Association · 2026
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  20. Reduced Hand Specialization and Idiosyncratic Visuomotor Strategies in Autism During Naturalistic Object Manipulation.Autism research : official journal of the International Society for Autism Research · 2026
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59 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Katharine E ZuckermanChild and Adolescent Health Measurement Initiative, Oregon Health & Science University, Portland, Ore; Division of General Pediatrics, Oregon Health & Science University, Portland, Ore. Electronic address: zuckerma@ohsu.edu.
Brianna SincheChild and Adolescent Health Measurement Initiative, Oregon Health & Science University, Portland, Ore.
Angie MejiaChild and Adolescent Health Measurement Initiative, Oregon Health & Science University, Portland, Ore; Department of Sociology, Syracuse University, Syracuse, NY.
Martiza CobianChild and Adolescent Health Measurement Initiative, Oregon Health & Science University, Portland, Ore; Department of Psychology, Pacific University, Hillsboro, Ore.
Thomas BeckerDepartment of Public Health and Preventive Medicine, Oregon Health & Science University, Portland, Ore.
Christina NicolaidisDepartment of Public Health and Preventive Medicine, Oregon Health & Science University, Portland, Ore; Department of Internal Medicine and Geriatrics, Oregon Health & Science University, Portland, Ore; School of Social Work, Portland State University, Portland, Ore.

Funding

Reducing Barriers to Autism Care in Latino ChildrenK23MH095828 · NIMH · OREGON HEALTH & SCIENCE UNIVERSITY · PI ZUCKERMAN, KATHARINE ELIZABETH · 2012 to 2016
$898k
NIMH NIH HHS 1K23MH095828NIMH NIH HHS K23 MH095828
6 · The paper itself

Abstract

objectiveLatino children are diagnosed with autism spectrum disorders (ASDs) at older ages and at the point of more severe symptoms. We sought to qualitatively describe community, family, and health care system barriers to ASD diagnosis in Latino children.

methodsFive focus groups and 4 qualitative interviews were conducted with 33 parents of Latino children previously diagnosed with an ASD. Participants described Latino community perceptions of autism and barriers they experienced during the diagnostic process. Sessions were audiorecorded and transcribed. Transcripts were coded by 2 researchers, and data were analyzed using thematic analysis.

resultsParents reported low levels of ASD information and high levels of mental health and disability stigma in the Latino community. Parents had poor access to care as a result of poverty, limited English proficiency, and lack of empowerment to take advantage of services. Providers sometimes dismissed parents' concerns. The ASD diagnostic process itself was slow, inconvenient, confusing, and uncomfortable for the child. These factors led many parents to normalize their child's early behaviors, deny that a problem existed, and lose trust in the medical system.

conclusionsAdditional educational outreach to Latino families, destigmatization of ASD, streamlining the ASD diagnostic process, and providing additional support to Latino parents of at-risk children may decrease delays in ASD diagnosis among Latino children.

Indexed as

Health Knowledge, Attitudes, PracticeHealth Services AccessibilityHispanic or LatinoParentsSocial StigmaAdultChildChild Development Disorders, PervasiveChild, PreschoolDelayed DiagnosisFemaleHumansIncomeMalePhysician-Patient RelationsQualitative Researchautism spectrum disorderdelayed diagnosishealth services accessibilityHispanic Americansqualitative research

Identifiers

PMID24767783
PMCPMC4006363

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.