SynthesisBMC medical informatics and decision making2014
Congruence between patients' preferred and perceived participation in medical decision-making: a review of the literature.
Synthesis in BMC medical informatics and decision making, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 84 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
84 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Shared decision-making in palliative cancer care: A systematic review and metasynthesis.Palliative medicine · 2024Pooled it
- Decision aids to help older people make health decisions: a systematic review and meta-analysis.BMC medical informatics and decision making · 2016Pooled it
- Potential Adverse Outcomes of Shared Decision Making about Palliative Cancer Treatment: A Secondary Analysis of a Randomized Trial.Medical decision making : an international journal of the Society for Medical Decision Making · 2024Trial
- Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis.Health expectations : an international journal of public participation in health care and health policy · 2022Trial
- Engaging patients in population-based chronic disease management: A qualitative study of barriers and intervention opportunities.Patient education and counseling · 2022Trial
- Trial
- Engaging Caregivers in Health-Related Housing Decisions for Older Adults With Cognitive Impairment: A Cluster Randomized Trial.The Gerontologist · 2020Trial
- Sexism Interacts with Patient-Physician Gender Concordance in Influencing Patient Control Preferences: Findings from a Vignette Experimental Design.Applied psychology. Health and well-being · 2020Trial
- Patient activation intervention to facilitate participation in recovery after total knee replacement (MIME): a cluster randomised cross-over trial.BMJ quality & safety · 2019Trial
- Use of Integrative Oncology, Involvement in Decision-Making, and Breast Cancer Survivor Health-Related Quality of Life in the First 5 Years Postdiagnosis.Integrative cancer therapies · 2018Trial
- Shared decision-making and medication adherence among community adults with chronic diseases: a cross-sectional study in Hubei Province, China.BMC medical informatics and decision making · 2026Article
- Empowering choices: insights from healthcare professionals on shared decision-making in kidney cancer.BJU international · 2026Article
- Japanese hematologists' and oncologists' perceptions of patient preferences for shared decision-making.BMC research notes · 2026Article
- Assessing Clinical Factors and Communication Barriers Impacting Postoperative Regret in Patients with Pancreatic Cancer.Annals of surgical oncology · 2026Article
- Considering Preference-Based Patient Participation-Scientific and Clinical Outcome Measures With the Patient Preferences for Patient Participation Tool.Journal of evaluation in clinical practice · 2026Article
- Geriatric-specific considerations in treatment conversations with older adults with early-stage hormone receptor-positive breast cancer.Journal of geriatric oncology · 2026Article
- Determinants of practice for decision coaching in Germany: a qualitative exploration of decision coaches' perspectives.BMC health services research · 2025Article
- Congruence of cancer patients' desired and achieved decision-making roles between self, doctor and family: a cross-sectional multi-site survey.BMC cancer · 2025Article
- Patient-Centred Preferences for Autonomy and Information-Seeking Among Periodontal Patients in Dental Decision Making.Journal of clinical periodontology · 2025Article
- Development of a generic decision guide for patients in oncology: a qualitative interview study.BMC medical informatics and decision making · 2025Article
24 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients are increasingly expected and asked to be involved in health care decisions. In this decision-making process, preferences for participation are important. In this systematic review we aim to provide an overview the literature related to the congruence between patients' preferences and their perceived participation in medical decision-making. We also explore the direction of mismatched and outline factors associated with congruence.
methodsA systematic review was performed on patient participation in medical decision-making. Medline, PsycINFO, CINAHL, EMBASE and the Cochrane Library databases up to September 2012, were searched and all studies were rigorously critically appraised. In total 44 papers were included, they sampled contained 52 different patient samples.
resultsMean of congruence between preference for and perceived participation in decision-making was 60% (49 and 70 representing 25th and 75th percentiles). If no congruence was found, of 36 patient samples most patients preferred more involvement and of 9 patient samples most patients preferred less involvement. Factors associated with preferences the most investigated were age and educational level. Younger patients preferred more often an active or shared role as did higher educated patients.
conclusionThis review suggests that a similar approach to all patients is not likely to meet patients' wishes, since preferences for participation vary among patients. Health care professionals should be sensitive to patients individual preferences and communicate about patients' participation wishes on a regular basis during their illness trajectory.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.