Evidence map›Paper›PMID 24702994›Full record

ArticleCell stem cell2014

Identifiability and privacy in pluripotent stem cell research.

Rosario Isasi, Peter W Andrews, Jay M Baltz, Annelien L Bredenoord, Paul Burton, Ing-Ming Chiu, Sara Chandros Hull, Ji-Won Jung, Andreas Kurtz, Geoffrey Lomax and 10 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Cell stem cell, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed.

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  20. If Human Brain Organoids Are the Answer to Understanding Dementia, What Are the Questions?The Neuroscientist : a review journal bringing neurobiology, neurology and psychiatry
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Rosario IsasiCentre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montreal, QC H3A 0G1, Canada. Electronic address: rosario.isasi@mcgill.ca.
Peter W AndrewsDepartment of Biomedical Science, University of Sheffield, Sheffield S10 2TN, UK.
Jay M BaltzOttawa Hospital Research Institute and Department of Obstetrics and Gynecology, Faculty of Medicine, University of Ottawa, Ottawa, ON K1H 8L6, Canada.
Annelien L BredenoordJulius Center, Department of Medical Ethics, University Medical Center Utrecht, Utrecht 3584 CX, The Netherlands.
Paul BurtonSchool of Social and Community Medicine, University of Bristol, Bristol BS8 1TH, UK.
Ing-Ming ChiuRegenerative Medicine Research, ICSM, National Health Research Institutes, Jhunan, Miaoli 35053, Taiwan.
Sara Chandros HullNHGRI Bioethics Core, National Institutes of Health, Bethesda, MD 20892-1156, USA.
Ji-Won JungDivision of Intractable Diseases, Center for Biomedical Sciences, National Institute of Health and Korea Centers for Disease Control and Prevention, Chungcheongbuk-do 363-951, Republic of Korea.
Andreas KurtzBerlin-Brandenburg Center for Regenerative Therapies, Berlin 13353, Germany.
Geoffrey LomaxCalifornia Institute for Regenerative Medicine, San Francisco, CA 94107, USA.
Tenneille LudwigWiCell Research Institute, Madison, WI 53726, USA.
Michael McDonaldW. Maurice Young Centre for Applied Ethics, School of Population and Public Health, University of British Columbia, Vancouver, BC V6T 1Z2, Canada.
Clive MorrisNational Health & Medical Research Council, Canberra ACT 2601, Australia.
Huck Hui NgA(∗)STAR, Genome Institute of Singapore, Singapore 138672, Singapore.
Heather RookeInternational Society for Stem Cell Research, Skokie, IL 60077, USA.
Alka SharmaMedical Biotechnology Division, Department of Biotechnology, Ministry of Science & Technology, Government of India, New Delhi 110-003, India.
Glyn N StaceyNational Institute for Biological Standards and Control: A Centre of the MHRA, South Mimms, Hertfordshire UB8 3PH, UK.
Clare WilliamsDepartment of Sociology & Communications, School of Social Sciences, Brunel University, Kingston Lane, Uxbridge, Middlesex UB8 3PH, UK.
Fanyi ZengShanghai Institute of Medical Genetics, Shanghai Stem Cell Institute, Shanghai 200025, People's Republic of China.
Bartha Maria KnoppersCentre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montreal, QC H3A 0G1, Canada.

Funding

NHGRI/DIR Bioethics CoreZIDHG200347 · NHGRI · NATIONAL HUMAN GENOME RESEARCH INSTITUTE · PI BERKMAN, BENJAMIN · 2010 to 2025
$15.5M
Intramural NIH HHS Z99 HG999999Medical Research Council G1001045Medical Research Council MR/L01324X/1Wellcome Trust 086034
6 · The paper itself

Abstract

Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.

Indexed as

PrivacyHumansPluripotent Stem CellsStem Cell Research

Identifiers

PMID24702994
PMCPMC4815907

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.