SynthesisJournal of the American Medical Informatics Association : JAMIA
Clinical research data warehouse governance for distributed research networks in the USA: a systematic review of the literature.
Synthesis in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The ethical and legal landscape of brain data governance.PloS one · 2022Pooled it
- Implementation of data access and use procedures in clinical data warehouses. A systematic review of literature and publicly available policies.BMC medical informatics and decision making · 2020Pooled it
- Building a healthcare data warehouse: considerations, opportunities, and challenges.Frontiers in digital health · 2025Review
- The development and use of data warehousing in clinical settings: a scoping review.Frontiers in digital health · 2025Review
- Clinical Research Informatics: a Decade-in-Review.Yearbook of medical informatics · 2024Review
- Implementing a Biomedical Data Warehouse From Blueprint to Bedside in a Regional French University Hospital Setting: Unveiling Processes, Overcoming Challenges, and Extracting Clinical Insight.JMIR medical informatics · 2024Article
- OHDSI-compliance: a set of document templates facilitating the implementation and operation of a software stack for real-world evidence generation.Frontiers in medicine · 2024Article
- Applying Natural Language Processing to Textual Data From Clinical Data Warehouses: Systematic Review.JMIR medical informatics · 2023Review
- Factors Influencing the Acceptance of Distributed Research Networks in Korea: Data Accessibility and Data Security Risk.Healthcare informatics research · 2023Article
- An Investigation of Factors Influencing the Postponement of the Use of Distributed Research Networks in South Korea: Web-Based Users' Survey Study.JMIR formative research · 2023Article
- Article
- Understanding enterprise data warehouses to support clinical and translational research: enterprise information technology relationships, data governance, workforce, and cloud computing.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Two heads are better than one: current landscape of integrating QSP and machine learning : An ISoP QSP SIG white paper by the working group on the integration of quantitative systems pharmacology and machine learning.Journal of pharmacokinetics and pharmacodynamics · 2022Review
- Infrastructuring an organizational node for a federated research and data network: A case study from a sociotechnical perspective.Journal of clinical and translational science · 2021Article
- Privacy-preserving architecture for providing feedback to clinicians on their clinical performance.BMC medical informatics and decision making · 2020Article
- National health information technology priorities for research: A policy and development agenda.Journal of the American Medical Informatics Association : JAMIA · 2020Article
- Learning from electronic health records across multiple sites: A communication-efficient and privacy-preserving distributed algorithm.Journal of the American Medical Informatics Association : JAMIA · 2020Article
- A Data Element-Function Conceptual Model for Data Quality Checks.EGEMS (Washington, DC) · 2019Article
- A dimensional warehouse for integrating operational data from clinical trials.Database : the journal of biological databases and curation · 2019Article
- A Framework for Classification of Electronic Health Data Extraction-Transformation-Loading Challenges in Data Network Participation.EGEMS (Washington, DC) · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
objectiveTo review the published, peer-reviewed literature on clinical research data warehouse governance in distributed research networks (DRNs). MATERIALS AND
methodsMedline, PubMed, EMBASE, CINAHL, and INSPEC were searched for relevant documents published through July 31, 2013 using a systematic approach. Only documents relating to DRNs in the USA were included. Documents were analyzed using a classification framework consisting of 10 facets to identify themes.
results6641 documents were retrieved. After screening for duplicates and relevance, 38 were included in the final review. A peer-reviewed literature on data warehouse governance is emerging, but is still sparse. Peer-reviewed publications on UK research network governance were more prevalent, although not reviewed for this analysis. All 10 classification facets were used, with some documents falling into two or more classifications. No document addressed costs associated with governance. DISCUSSION: Even though DRNs are emerging as vehicles for research and public health surveillance, understanding of DRN data governance policies and procedures is limited. This is expected to change as more DRN projects disseminate their governance approaches as publicly available toolkits and peer-reviewed publications.
conclusionsWhile peer-reviewed, US-based DRN data warehouse governance publications have increased, DRN developers and administrators are encouraged to publish information about these programs.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.