ArticleBMJ supportive & palliative care2014
The practice of palliative care from the perspective of patients and carers.
Article in BMJ supportive & palliative care, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed.
- Palliative radiotherapy combined with stent insertion to reduce recurrent dysphagia in oesophageal cancer patients: the ROCS RCT.Health technology assessment (Winchester, England) · 2021Trial
- A critical realist evaluation of a music therapy intervention in palliative care.BMC palliative care · 2017Trial
- Article
- Quality of Palliative Care: Perspective of Healthcare Providers at a Tertiary Hospital in Riyadh, Saudi Arabia.Journal of religion and health · 2020Article
- Palliative care in its own discourse: a focused ethnography of professional messaging in palliative care.BMC palliative care · 2020Article
- Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study.BMJ supportive & palliative care · 2019Article
- Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives.BMC palliative care · 2018Article
- 'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions.BMC palliative care · 2018Article
- Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer.Sociology of health & illness · 2017Article
- "It still haunts me whether we did the right thing": a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers.BMC palliative care · 2016Article
- Article
- Coming and going: predicting the discharge of cancer patients admitted to a palliative care unit: easier than thought?Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2015Observational
- "End-of-Life Care is more than Wound Care": Health-Care Providers' Perceptions of Psychological and Interpersonal needs of Patients with Terminal Cancer.Indian journal of palliative careArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectivesThe meaning that patients and carers attribute to their experience of palliative care is fundamental to the provision, practice and evaluation of optimal care. This analysis aims to establish contemporary key practices and priorities from the perspective of patients and carers.
methodsThematic analysis was applied to 594 anonymised free text responses from patients and carers documenting their experiences of palliative care.
resultsThe emotional experience of care is the most significant aspect documented by patients and carers. It refers to the process of care in key domains of respect, renewal, refuge and restorative care. Patients and carers described care as either enabling or directly provided. The emotional experience of care was not confined to psychosocial need and constituted a core practice drawing on professional expertise and interpersonal skills, some of which may be taken for granted by staff themselves.
conclusionsThe emotional experience of care is examined as a practice rather than a topic, acknowledging that patients and carers documented the performance of care and the resulting impact in a variety of situations. The emotional experience of care comprises key aspects of contextual care facilitating autonomy and connectedness. It is embedded in relationships mediated by communication and tenor of care. The perspective of patients and carers places the emotional experience of palliative care centrally. This has implications for future service evaluation and the incorporation of this skill-based outcome alongside more traditional outcome measures such as the amelioration of physical symptoms.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.