ArticleEuropean journal of public health2014
Burden on family carers and care-related financial strain at the end of life: a cross-national population-based study.
Article in European journal of public health, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it, 45 citations in OpenAlex.
- Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis.Palliative medicine · 2021Pooled it
- The involvement of family in the Dutch practice of euthanasia and physician assisted suicide: a systematic mixed studies review.BMC medical ethics · 2019Pooled it
- Socioeconomic profile and vulnerabilities of people receiving home-based palliative care in Kerala, India.BMC palliative care · 2025Article
- Organizational models and patient-reported outcomes for palliative care across five tertiary hospitals in Nigeria: An environmental scan.PLOS global public health · 2025Article
- Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review.Research involvement and engagement · 2021Review
- Equity and the financial costs of informal caregiving in palliative care: a critical debate.BMC palliative care · 2020Article
- End-of-life cost and its determinants for cancer patients in urban China: a population-based retrospective study.BMJ open · 2019Article
- Individual and country-level determinants of nursing home admission in the last year of life in Europe.PloS one · 2019Article
- Article
- Relieving one's relatives from the burdens of care.Medicine, health care, and philosophy · 2018Article
- First Do No Harm: Euthanasia of Patients with Dementia in Belgium.The Journal of medicine and philosophy · 2016Article
- Population Characteristics and Needs of Informal Caregivers Associated With the Risk of Perceiving a High Burden: A Cross-Sectional Study.Inquiry : a journal of medical care organization, provision and financingArticle
Corrections and comments
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Authors and funding
12 authors at 8 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe rising number of deaths from cancer and other life-limiting illnesses is accompanied by a growing number of family carers who provide long-lasting care, including end-of-life care. This population-based epidemiological study aimed to describe and compare in four European countries the prevalence of and factors associated with physical or emotional overburden and difficulties in covering care-related costs among family carers of people at the end of life.
methodsA cross-national retrospective study was conducted via nationwide representative sentinel networks of general practitioners (GPs). Using a standardized form, GPs in Belgium, The Netherlands, Italy and Spain recorded information on the last 3 months of life of every deceased adult practice patient (1 January 2009-31 December 2010). Sudden deaths were excluded.
resultsWe studied 4466 deaths. GPs judged family carers of 28% (Belgium), 30% (The Netherlands), 35% (Spain) and 71% (Italy) of patients as physically/emotionally overburdened (P < 0.001). For 8% (Spain), 14% (Belgium), 36% (The Netherlands) and 43% (Italy) patients, GPs reported difficulties in covering care-related costs (P < 0.001). Patients <85 years of age (Belgium, Italy) had higher odds of having physically/emotionally overburdened family carers and financial burden. Death from non-malignant illness (vs. cancer) (Belgium and Italy) and dying at home compared with other locations (The Netherlands and Italy) were associated with higher odds of difficulties in covering care-related costs.
conclusionIn all countries studied, and particularly in Italy, GPs observed a considerable extent of physical/emotional overburden as well as difficulties in covering care-related costs among family carers of people at the end of life. Implications for health- and social care policies are discussed.
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