ArticlePloS one2014
Quality of life of nursing home residents with dementia: validation of the German version of the ICECAP-O.
Article in PloS one, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 3 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
35 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Preference-based measures in people with dementia: a systematic review of psychometric properties.Health and quality of life outcomes · 2026Pooled it
- ICECAP-O, the current state of play: a systematic review of studies reporting the psychometric properties and use of the instrument over the decade since its publication.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Pooled it
- A systematic review of instruments for measuring outcomes in economic evaluation within aged care.Health and quality of life outcomes · 2015Pooled it
- A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT.Health technology assessment (Winchester, England) · 2020Trial
- Economic evaluation of aerobic exercise training in older adults with vascular cognitive impairment: PROMoTE trial.BMJ open · 2017Trial
- Trial
- Lost in Translation? A Scoping Review to Explore the Translation and Cultural Adaptation of Preference-Based Measures of Quality of Life.Applied health economics and health policy · 2026Article
- Validation of the ICECAP-O for assessing wellbeing in people with mild dementia in Denmark.Health and quality of life outcomes · 2026Article
- Self-reporting quality of life in mild-to-moderate Alzheimer's disease and Lewy body dementia: Comparing capability and health-focused measures using response process validation.Social science & medicine (1982) · 2026Article
- Uses of the ICECAP measure of capability in adults with neurological health conditions: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Article
- Construct validity of measures of care home resident quality of life: cross-sectional analysis using data from a pilot minimum data set in England.Health and quality of life outcomes · 2025Article
- Differences in trajectories of quality of life according to type of dementia: 6-year longitudinal findings from the IDEAL programme.BMC medicine · 2024Article
- Needs of patients with parkinsonism and their caregivers: a protocol for the PRIME-UK cross-sectional study.BMJ open · 2022Article
- What does a "good life" mean for people living with dementia? A protocol for a think-aloud study informing the value of care.Frontiers in aging neuroscience · 2022Article
- Comparing the measurement properties of the ICECAP-A and ICECAP-O instruments in ages 50-70: a cross-sectional study on a representative sample of the Hungarian general population.The European journal of health economics : HEPAC : health economics in prevention and care · 2021Article
- Conceptualising 'Benefits Beyond Health' in the Context of the Quality-Adjusted Life-Year: A Critical Interpretive Synthesis.PharmacoEconomics · 2021Review
- Capability of well-being: validation of the Hungarian version of the ICECAP-A and ICECAP-O questionnaires and population normative data.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- A qualitative exploration of the content and face validity of preference-based measures within the context of dementia.Health and quality of life outcomes · 2020Article
- Capability instruments in economic evaluations of health-related interventions: a comparative review of the literature.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Review
Corrections and comments
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Authors and funding
4 authors.
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No grant is acknowledged in the PubMed record.
Abstract
objectivesTo validate the ICECAP-O capability wellbeing measure's German translation in older people with dementia living in a nursing home, and to investigate the influence of proxy characteristics on responses.
methodCross-sectional study. For 95 residents living in a German nursing home, questionnaires were completed by nursing professionals serving as proxy respondents. We investigated the convergent validity of the ICECAP-O with other Quality of Life (Qol) measures, the EQ-5D extended with a cognitive dimension (EQ-5D+C), the Alzheimer's Disease Related Quality of Life (ADRQL) measures, and the Barthel-index measure of Activities of Daily Living (ADL). Discriminant validity was investigated using bivariate and multivariate stepwise regression analysis, comparing ICECAP-O scores between subgroups varying in dementia severity, care dependency, ADL status and demographic characteristics.
resultsConvergent validity between the ICECAP-O, EQ-5D+C, ADRQL and Barthel-Index scores was moderate to good (with correlations of 0.72, 0.69 and 0.53 respectively), but differed considerably between dimensions of the instruments. Discriminant validity was confirmed by finding differences in ICECAP-O scores between subgroups based on ADL scores (0.58 below 65 points on the Barthel-index and 0.80 above 65 points) and other characteristics. The ICECAP-O scores based on available tariffs were related to proxy characteristics gender (0.52 males versus 0.65 females) and work experience (0.61 below 2 years of experience versus 0.68 above 2 years). DISCUSSION: The results of this study suggest that the ICECAP-O is a promising generic measure for general Qol and capability of people with dementia living in a nursing home. Validity tests generally yielded favorable results. Work experience and gender appeared to influence proxy response, which raises questions regarding appropriate proxies, especially since the ICECAP-O may be completed by proxies relatively often. Further research is necessary to validate the German version of the ICECAP-O, with specific attention to proxy completion for people with dementia.
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