SynthesisBMC medical informatics and decision making2013
Addressing health literacy in patient decision aids.
Synthesis in BMC medical informatics and decision making, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06799936 (A Communication-Priming Intervention to Improve Shared Decision-Making Between Older Adults With Advanced Chronic Kidney Disease and Clinicians), which is not on this map. Cited by 140 papers, 7 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Communication-Priming Intervention to Improve Shared Decision-Making Between Older Adults With Advanced Chronic Kidney Disease and Clinicians: A Cluster-Randomized Controlled Trial
Who cites it
140 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Key targets for activating anaesthesia shared decision-making: a mixed methods systematic review.Anaesthesia · 2026Pooled it
- Systematic review of shared decision-making interventions for people living with chronic respiratory diseases.BMJ open · 2023Pooled it
- Effectiveness of health literacy interventions on anxious and depressive symptomatology in primary health care: A systematic review and meta-analysis.Frontiers in public health · 2023Pooled it
- Towards a more patient-centered clinical trial process: A systematic review of interventions incorporating health literacy best practices.Contemporary clinical trials · 2022Pooled it
- Addressing Health Literacy in Patient Decision Aids: An Update from the International Patient Decision Aid Standards.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Pooled it
- Are cancer-related decision aids appropriate for socially disadvantaged patients? A systematic review of US randomized controlled trials.BMC medical informatics and decision making · 2016Pooled it
- Features of Computer-Based Decision Aids: Systematic Review, Thematic Synthesis, and Meta-Analyses.Journal of medical Internet research · 2016Pooled it
- Quantitative assessment of visual designs for communicating patient-reported outcomes in breast cancer care to patients.Journal of patient-reported outcomes · 2025Trial
- Evaluating the effectiveness of a risk prediction model (PERSARC) on improving treatment decisions quality for patients with soft-tissue sarcomas: the VALUE-PERSARC study.BMC medical informatics and decision making · 2025Trial
- Effects by educational attainment of a mammography screening patient decision aid for women aged 75 years and older.Cancer · 2021Trial
- Implementation and sustainability factors of two early-stage breast cancer conversation aids in diverse practices.Implementation science : IS · 2021Trial
- Trial
- Values clarification and parental decision making about newborn genomic sequencing.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2020Trial
- Trial
- Evaluating the Use of a Decision Aid for Parents Facing Extremely Premature Delivery: A Randomized Trial.The Journal of pediatrics · 2019Trial
- A Novel Decision Aid to Encourage Smoking Cessation Among Patients at an Urban Safety Net Clinic.Preventing chronic disease · 2018Trial
- Trial
- What matters most: protocol for a randomized controlled trial of breast cancer surgery encounter decision aids across socioeconomic strata.BMC public health · 2018Trial
- A web-based personalized risk communication and decision-making tool for women with dense breasts: Design and methods of a randomized controlled trial within an integrated health care system.Contemporary clinical trials · 2017Trial
- Trial
80 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEffective use of a patient decision aid (PtDA) can be affected by the user's health literacy and the PtDA's characteristics. Systematic reviews of the relevant literature can guide PtDA developers to attend to the health literacy needs of patients. The reviews reported here aimed to assess:
methodsWe reviewed literature for evidence relevant to these two aims. When high-quality systematic reviews existed, we summarized their evidence. When reviews were unavailable, we conducted our own systematic reviews.
resultsAim 1: In an existing systematic review of PtDA trials, lower health literacy was associated with lower patient health knowledge (14 of 16 eligible studies). Fourteen studies reported practical design strategies to improve knowledge for lower health literacy patients. In our own systematic review, no studies reported on values clarity per se, but in 2 lower health literacy was related to higher decisional uncertainty and regret. Lower health literacy was associated with less desire for involvement in 3 studies, less question-asking in 2, and less patient-centered communication in 4 studies; its effects on other measures of patient involvement were mixed. Only one study assessed the effects of a health literacy intervention on outcomes; it showed that using video to improve the salience of health states reduced decisional uncertainty. Aim 2: In our review of 97 trials, only 3 PtDAs overtly addressed the needs of lower health literacy users. In 90% of trials, user health literacy and readability of the PtDA were not reported. However, increases in knowledge and informed choice were reported in those studies in which health literacy needs were addressed.
conclusionLower health literacy affects key decision-making outcomes, but few existing PtDAs have addressed the needs of lower health literacy users. The specific effects of PtDAs designed to mitigate the influence of low health literacy are unknown. More attention to the needs of patients with lower health literacy is indicated, to ensure that PtDAs are appropriate for lower as well as higher health literacy patients.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.