ArticleHealth expectations : an international journal of public participation in health care and health policy2015
Revealing the hidden agency of children in a clinical setting.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
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Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A Systematic Review on Children's Participation in Healthcare From a Child's Perspective.Scandinavian journal of caring sciences · 2025Pooled it
- The Concept of Child-Centred Care in Healthcare: A Scoping Review.Pediatric reports · 2024Article
- An Examination of Power in a Triadic Model of Parent-Child-Pediatrician Relationships Related to Early Childhood Gender Development.Journal of family theory & review · 2023Article
- Barriers and facilitators to taking on diabetes self-management tasks in pre-adolescent children with type 1 diabetes: a qualitative study.BMC endocrine disorders · 2018Article
- Perspectives of adolescents on decision making about participation in a biobank study: a pilot study.BMJ paediatrics open · 2017Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInteractions with children in clinical settings are often criticized because parents and medical professionals speak for children rather than to them. Such approaches do not take the agency of children into account.
objectiveFirst, to examine how children enact agency in a clinical encounter and draw lessons from this to improve health-care practices for children and, second, to explain how looking at agency might help to move the participation agenda forwards.
designA qualitative study incorporating a range of methods, including participant observation, interviews and focus group discussions.
settingThree hospitals in the Netherlands.
participantsChildren with diabetes type 1, between 8 and 12 years (n = 30), parents (n = 22) and medical professionals (n = 16).
resultsChildren do not simply accept the recurrent health education from medical professionals. Instead, they attribute their own personal meaning to their disease and treatment. Drawing from their years of experience with the disease and health care and the image of a passive and vulnerable child, they actively find ways to balance personal goals with medically defined goals.
conclusionEfforts to facilitate child participation should be based on insights into the ways in which children enact agency in the clinical encounter. Our data show that children already participate in health care and that their enactment of agency is based on a practical logic. Understanding of children's current participation and agency is needed to more successfully attune their treatment to their daily lives with diabetes. This is crucial for the success of treatment and the well-being of children.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.