Trial reportInternational journal of chronic obstructive pulmonary disease2014
How do informal self-care strategies evolve among patients with chronic obstructive pulmonary disease managed in primary care? A qualitative study.
Trial report in International journal of chronic obstructive pulmonary disease, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 3 syntheses or guidelines pooled it, 32 citations in OpenAlex.
- Support and Its Effect for Persons Affected by COPD and Their Next of Kin - an Systematic Integrative Review.International journal of chronic obstructive pulmonary disease · 2025Pooled it
- Social network participation towards enactment of self-care in people with chronic obstructive pulmonary disease: A qualitative meta-ethnography.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Qualitative systematic review of barriers and facilitators to self-management of chronic obstructive pulmonary disease: views of patients and healthcare professionals.NPJ primary care respiratory medicine · 2018Pooled it
- A Digital Platform to Support Self-management of Multiple Chronic Conditions (ProACT): Findings in Relation to Engagement During a One-Year Proof-of-Concept Trial.Journal of medical Internet research · 2021Trial
- Prevention of Re-Hospitalization for Acute Exacerbations: Perspectives of People with Chronic Obstructive Pulmonary Disease: A Qualitative Study.International journal of chronic obstructive pulmonary disease · 2023Article
- Patient Work and Their Contexts: Scoping Review.Journal of medical Internet research · 2020Article
- Disease self-management in patients with moderate COPD: a thematic analysis.European clinical respiratory journal · 2020Article
- Patient work from a context and time use perspective: a mixed-methods study protocol.BMJ open · 2018Observational
- Exploring medicines management by COPD patients and their social networks after hospital discharge.International journal of clinical pharmacy · 2018Article
- Reluctance of patients with chronic obstructive pulmonary disease in its early stages and their families to participate in a partnership-based self-management trial: A search for explanation.Chronic respiratory disease · 2018Article
- A qualitative study of patients' experiences of participating in SPACE for COPD: a Self-management Programme of Activity, Coping and Education.ERJ open research · 2017Article
- Review
- Experiences of patients undergoing pulmonary rehabilitation during an exacerbation of chronic respiratory disease.Chronic respiratory disease · 2017Article
- Development of a training program to support health care professionals to deliver the SPACE for COPD self-management program.International journal of chronic obstructive pulmonary disease · 2017Article
- General practitioners' perceptions of COPD treatment: thematic analysis of qualitative interviews.International journal of chronic obstructive pulmonary disease · 2016Article
- Cognitive function and living situation in COPD: is there a relationship with self-management and quality of life?International journal of chronic obstructive pulmonary disease · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is much description in the literature of how patients with chronic obstructive pulmonary disease (COPD) manage their breathlessness and engage in self-care activities; however, little of this is from the perspective of those with less severe disease, who are primarily managed in primary care. This study aimed to understand the self-care experiences of patients with COPD who are primarily managed in primary care, and to examine the challenges of engaging in such behaviors.
methodsSemistructured interviews were carried out with 15 patients with COPD as part of a larger project evaluating a self-management intervention. Thematic analysis was supported by NVivo software (version 8, QSR International, Melbourne, Australia).
resultsThree main themes are described, ie, experiencing and understanding symptoms of COPD, current self-care activities, and the importance of family perceptions in managing COPD.
conclusionSelf-care activities evolved spontaneously as participants experienced symptoms of COPD. However, there was a lack of awareness about whether these strategies would impact upon symptoms. Perceptions of COPD by family members posed a challenge to self-care for some participants. Health care professionals should elicit patients' prior disease experiences and utilize spontaneous attempts at disease management in future self-management. These findings have implications for promoting self-management and enhancing quality of life.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.