ArticleHealth expectations : an international journal of public participation in health care and health policy2015
Analysis of patient organizations' needs and ICT use--The APTIC project in Spain to develop an online collaborative social network.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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5 authors at 1 institution in 1 country.
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Abstract
backgroundThe purpose of this first part of the APTIC (Patient Organisations and ICT) project is to design and run an online collaborative social network for paediatric patient organizations (PPOs).
objectiveTo analyse the needs of PPOs in Spain to identify opportunities to improve health services through the use of ICT. SETTING AND
participantsA convenience sample of staff from 35 PPOs (54.68% response rate) participated in a structured online survey and three focus groups (12 PPOs).
resultsPaediatric patient organizations' major needs are to provide accredited and managed information, increase personal support and assistance and promote joint commitment to health care. Moreover, PPOs believe in the Internet's potential to meet their needs and support their activities. Basic limitations to using the Internet are lack of knowledge and resources.
conclusionThe discussion of the data includes key elements of designing an online collaborative social network and reflections on health services provided.
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