The "right not to know" in the genomic era: time to break from tradition?

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

23 citing papers in PubMed.

1. Diagnostic investigations: harmless tests or booby traps?Diagnosis (Berlin, Germany) · 2026
   Article
2. Genetic Findings of Potential Donor Origin in Cells Used for Cell and Gene Therapy: Recommendations from the World Marrow Donor Association.Transplantation and cellular therapy · 2026
   Review
3. Application of Genetic Testing for Anorexia Nervosa: An Ethical Analysis.Brain and behavior · 2025
   Article
4. Precision medicine and Friedreich ataxia: promoting equity, beneficence, and informed consent for novel gene therapies.International journal for equity in health · 2024
   Article
5. Blinding to Circumvent Human Biases: Deliberate Ignorance in Humans, Institutions, and Machines.Perspectives on psychological science : a journal of the Association for Psychological Science · 2024
   Article
6. Retinitis Pigmentosa: Current Clinical Management and Emerging Therapies.International journal of molecular sciences · 2023
   Review
7. Implicit and explicit racial prejudice and stereotyping toward Black (vs. White) Americans: The prevalence and variation among genetic counselors in North America.Journal of genetic counseling · 2023
   Article
8. How does the genomic naive public perceive whole genomic testing for health purposes? A scoping review.European journal of human genetics : EJHG · 2023
   Article
9. Fetal information as shared information: using NIPT to test for adult-onset conditions.Monash bioethics review · 2021
   Article
10. Ethical Issues in Care and Treatment of Neuronal Ceroid Lipofuscinoses (NCL)-A Personal View.Frontiers in neurology · 2021
    Review
11. Parent Perspectives Towards Genetic and Epigenetic Testing for Autism Spectrum Disorder.Journal of autism and developmental disorders · 2020
    Article
12. Genetic Basis for Congenital Heart Disease: Revisited: A Scientific Statement From the American Heart Association.Circulation · 2018
    Review
13. Responsibility, identity, and genomic sequencing: A comparison of published recommendations and patient perspectives on accepting or declining incidental findings.Molecular genetics & genomic medicine · 2018
    Article
14. Ethical and counseling challenges in prenatal exome sequencing.Prenatal diagnosis · 2018
    Article
15. The Right to Know: A Revised Standard for Reporting Incidental Findings.The Hastings Center report · 2018
    Article
16. A novelHuman genome variation · 2018
    Article
17. Genomic information and a person's right not to know: A closer look at variations in hypothetical informational preferences in a German sample.PloS one · 2018
    Article
18. Ethical considerations in genomic testing for hematologic disorders.Blood · 2017
    Review
19. REFUTING THE RIGHT NOT TO KNOW.Journal of health care law & policy · 2017
    Article
20. Incidental findings of uncertain significance: To know or not to know--that is not the question.BMC medical ethics · 2016
    Article

Corrections and comments

• Comment on
  Addressing the ethical challenges in genetic testing and sequencing of children.2014

Authors and funding

2 authors.

Funding

Abstract

PubMed holds no abstract for this paper.

Indexed as