ArticleJournal of empirical research on human research ethics : JERHRE2014
Social networking and online recruiting for HIV research: ethical challenges.
Article in Journal of empirical research on human research ethics : JERHRE, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed.
- Use of Videos Improves Informed Consent Comprehension in Web-Based Surveys Among Internet-Using Men Who Have Sex With Men: A Randomized Controlled Trial.Journal of medical Internet research · 2017Trial
- Digital strategies to promote crowdsourcing open calls for co-creating HIV interventions: a youth community-based participatory approach.Frontiers in digital health · 2025Article
- Educator's blueprint: Key considerations for using social media in survey-based medical education research.AEM education and training · 2024Article
- Ethical guidance for conducting health research with online communities: A scoping review of existing guidance.PloS one · 2024Article
- The company we keep. Using hemodialysis social network data to classify patients' kidney transplant attitudes with machine learning algorithms.BMC nephrology · 2022Article
- Addressing Health Inequities in Digital Clinical Trials: A Review of Challenges and Solutions From the Field of HIV Research.Epidemiologic reviews · 2022Review
- Using Social Media to Facilitate Communication About Women's Testing: Tool Validation Study.JMIR formative research · 2022Article
- Social Media Use for Research Participant Recruitment: Integrative Literature Review.Journal of medical Internet research · 2022Review
- Simulating Facebook Advertisements to Establish Cost per New HIV Diagnosis Using Routine and Targeted Models in a Local Population.Healthcare (Basel, Switzerland) · 2022Article
- Web-Based Multifaceted Approach for Community-Based HIV Self-Testing Among Female Sex Workers in Indonesia: Protocol for a Randomized Community Trial.JMIR research protocols · 2021Article
- Toward a Working Definition of eCohort Studies in Health Research: Narrative Literature Review.JMIR public health and surveillance · 2021Review
- Recruitment of US Adolescents and Young Adults (AYA) into Human Immunodeficiency Virus (HIV)-Related Behavioral Research Studies: A Scoping Review.Current HIV/AIDS reports · 2020Article
- Investigator initiated research in times of COVID-19: Let's go digital!Neurogastroenterology and motility · 2020Article
- Article
- Ethical Considerations in HIV eHealth Intervention Research: Implications for Informational Risk in Recruitment, Data Maintenance, and Consent Procedures.Current HIV/AIDS reports · 2020Review
- The CAN-DO-IT Model: a Process for Developing and Refining Online Recruitment in HIV/AIDS and Sexual Health Research.Current HIV/AIDS reports · 2020Review
- "They know what they are getting into:" Researchers confront the benefits and challenges of online recruitment for HIV research.Ethics & behavior · 2020Article
- Privacy, Trust, and Data Sharing in Web-Based and Mobile Research: Participant Perspectives in a Large Nationwide Sample of Men Who Have Sex With Men in the United States.Journal of medical Internet research · 2018Article
- A Facebook Follow-Up Strategy for Rural Drug-Using Women.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2017Article
- Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment.Journal of medical Internet research · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
Abstract
Social networking sites and online advertising organizations provide HIV/AIDS researchers access to target populations, often reaching difficult-to-reach populations. However, this benefit to researchers raises many issues for the protections of prospective research participants. Traditional recruitment procedures have involved straightforward transactions between the researchers and prospective participants; online recruitment is a more complex and indirect form of communication involving many parties engaged in the collecting, aggregating, and storing of research participant data. Thus, increased access to online data has challenged the adequacy of current and established procedures for participants' protections, such as informed consent and privacy/confidentiality. Internet-based HIV/AIDS research recruitment and its ethical challenges are described, and research participant safeguards and best practices are outlined.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.