ArticleJournal of cancer survivorship : research and practice2014
Unmet information and support needs in newly diagnosed thyroid cancer: comparison of adolescents/young adults (AYA) and older patients.
Article in Journal of cancer survivorship : research and practice, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
35 citing papers in PubMed, 2 syntheses or guidelines pooled it, 66 citations in OpenAlex.
- The Supportive Care Needs of Cancer Patients: a Systematic Review.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Pooled it
- 2015 American Thyroid Association Management Guidelines for Adult Patients with Thyroid Nodules and Differentiated Thyroid Cancer: The American Thyroid Association Guidelines Task Force on Thyroid Nodules and Differentiated Thyroid Cancer.Thyroid : official journal of the American Thyroid Association · 2016Guideline
- Designing Positive Psychology Interventions for Social Media: Cross-Sectional Web-Based Experiment With Young Adults With Cancer.JMIR cancer · 2024Trial
- Trial
- The role of rurality and race/ethnicity in thyroid cancer stage at diagnosis and survival among adolescents and young adults in the United States: an analysis of 2000-2021 SEER data.Cancer causes & control : CCC · 2026Article
- Systematic adolescent-centered supportive care program is associated with improved psychological status, treatment adherence, and social adaptation in adolescents with thyroid cancer undergoing radioiodine-131 therapy: a retrospective before-after cohort study with historical controls.Frontiers in endocrinology · 2026Article
- Identifying gaps and needs in care for adolescents and young adults with melanoma.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Clinicopathological and molecular characteristics of papillary thyroid carcinoma in adolescent and young adult patients.Endocrine journal · 2025Article
- Medication Adherence and Its Influencing Factors in Postoperative Thyroid Cancer Patients: A Cross-Sectional Study.Nursing research and practice · 2025Article
- Factors influencing the quality of life in survivors of differentiated thyroid cancer based on patient-reported outcomes: a single-center cross-sectional study.Frontiers in endocrinology · 2025Article
- Active Treatment to Survivorship Care: A Mixed-Methods Study Exploring Resource Needs and Preferences of Young Adult Cancer Survivors in Transition.Journal of adolescent and young adult oncology · 2023Article
- Change in worry over time among Hispanic women with thyroid cancer.Journal of cancer survivorship : research and practice · 2022Article
- Development and validation of the information needs questionnaire for differentiated thyroid cancer patient with radioactive iodine therapy (INQ-DTC).Nursing open · 2022Article
- Article
- Distress, anxiety, depression and unmet needs in thyroid cancer survivors: a longitudinal study.Endocrine · 2021Article
- Using Social Media for Peer-to-Peer Cancer Support: Interviews With Young Adults With Cancer.JMIR cancer · 2021Article
- Needs, Preferences, and Values during Different Treatment Decisions of Patients with Differentiated Thyroid Cancer.Journal of personalized medicine · 2021Article
- Unmet Information Needs Among Hispanic Women with Thyroid Cancer.The Journal of clinical endocrinology and metabolism · 2021Article
- Patient Perspectives on the Extent of Surgery and Radioactive Iodine Treatment for Low-Risk Differentiated Thyroid Cancer.Endocrine practice : official journal of the American College of Endocrinology and the American Association of Clinical Endocrinologists · 2021Article
- Patients' Reaction to Diagnosis with Thyroid Cancer or an Indeterminate Thyroid Nodule.Thyroid : official journal of the American Thyroid Association · 2021Article
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThyroid cancer (TC) is the most common cancer in adolescent and young adult (AYA) females ages 15-29 and second for 30-39. However, little research details the unmet support needs and survivorship concerns of TC patients.
methodsTC patients ≥15 years of age at diagnosis completed online surveys through the thyroid cancer survivor (ThyCa) website. Survivors rated the importance of medical/physical (M/Ph), practical, and emotional/psychological (E/Ps) realms of information during diagnosis and treatment, as well as recollection of receiving such information. Comparison was made between AYAs and those ≥40 years at diagnosis.
resultsOf 1,113 respondents, most were female (88.3 %), part Caucasian (92.3 %), and treated in academic or private urban settings. More than 80 % of patients rated receiving information about most M/Ph matters very or extremely important and >70 % for most E/Ps concerns. However, few recalled receiving any information besides the surrounding surgery and radioiodine (RAI). AYAs were more often female, non-white, Hispanic, married with children, living with a spouse/significant other, and unemployed at diagnosis (p < 0.001). Significant differences were noted in the importance AYAs placed on many M/Ph and practical matters, but not E/Ps ones. AYAs less commonly recalled receiving information on recurrence (p = 0.038), long-term side effects (p = 0.024), coping strategies (p = 0.049), support groups (p = 0.019), opportunities for meeting other survivors (p = 0.009), or help with treatment decisions (p = 0.036); they reported receiving less overall care for E/Ps concerns (p = 0.016).
conclusionTC patients place high importance on receiving information regarding most aspects of TC treatment and survivorship care. However, these information needs and survivorship concerns are largely unmet, especially among AYAs. IMPLICATIONS FOR CANCER SURVIVORS: Participating in multidisciplinary and survivorship-focused TC care may alleviate some of these unmet information and support needs.
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