ArticleAmerican journal of Alzheimer's disease and other dementias2014
Adaptation to Early-Stage Nonfluent/Agrammatic Variant Primary Progressive Aphasia: A First-Person Account.
Article in American journal of Alzheimer's disease and other dementias, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed, 19 citations in OpenAlex.
- Results from a randomised controlled pilot study of the Better Conversations with Primary Progressive Aphasia (BCPPA) communication partner training program for people with PPA and their communication partners.Pilot and feasibility studies · 2023Article
- 'Like going into a chocolate shop, blindfolded': What do people with primary progressive aphasia want from speech and language therapy?International journal of language & communication disorders · 2023Article
- Article
- The Alzheimer's Prevention Clinic at Weill Cornell Medical College / New York - Presbyterian Hospital: Risk Stratification and Personalized Early Intervention.The journal of prevention of Alzheimer's disease · 2015Article
- Experiences of Living With Primary Progressive Aphasia: A Scoping Review of Qualitative Studies.American journal of Alzheimer's disease and other dementiasArticle
- Quality of Life Ratings and Proxy Bias in Primary Progressive Aphasia: Two Sides to the Story?American journal of Alzheimer's disease and other dementiasArticle
Corrections and comments
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Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Primary progressive aphasia (PPA) is a young-onset neurodegenerative disorder characterized by declining language ability. The nonfluent/agrammatic variant of PPA (PPA-G) has the core features of agrammatism in language production and effortful, halting speech. As with other frontotemporal spectrum disorders, there is currently no cure for PPA, nor is it possible to slow the course of progression. The primary goal of treatment is therefore palliative in nature. However, there is a paucity of published information about strategies to make meaningful improvements to the quality of life of people with PPA, particularly in the early stages of the disease where any benefit could most be appreciated by the affected person. This report describes a range of strategies and adaptations designed to improve the quality of life of a person with early-stage PPA-G, based on my experience under the care of a multidisciplinary medical team.
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Registered trials
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