ArticleJournal of community genetics2014
Finding people who will tell you their thoughts on genomics-recruitment strategies for social sciences research.
Article in Journal of community genetics, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed.
- Planned Behavior in the United Kingdom and Ireland Online Medicine Purchasing Context: Mixed Methods Survey Study.JMIR formative research · 2025Article
- Article
- Australians' views and experience of personal genomic testing: survey findings from the Genioz study.European journal of human genetics : EJHG · 2019Article
- Young adults' attitudes to sharing whole-genome sequencing information: a university-based survey.BMC medical genomics · 2019Article
- Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research.Human genomics · 2018Article
- Stakeholders in psychiatry and their attitudes toward receiving pertinent and incident findings in genomic research.American journal of medical genetics. Part A · 2017Article
- The RUDY study: using digital technologies to enable a research partnership.European journal of human genetics : EJHG · 2017Article
- The elusive ideal of inclusiveness: lessons from a worldwide survey of neurologists on the ethical issues raised by whole-genome sequencing.BMC medical ethics · 2017Article
- Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.European journal of human genetics : EJHG · 2016Article
- Designing and Testing an Inventory for Measuring Social Media Competency of Certified Health Education Specialists.Journal of medical Internet research · 2015Article
- Potential research participants support the return of raw sequence data.Journal of medical genetics · 2015Article
- Online questionnaire development: using film to engage participants and then gather attitudes towards the sharing of genomic data.Social science research · 2014Article
- The response of the Irish pharmaceutical manufacturing sector to the COVID-19 pandemic with a focus on Lean and JIT.The journal of medicine accessArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings from whole genome studies. This involved recruiting members of the public, genetic health professionals, genomic researchers and non-genetic health professionals. A novel survey was designed that contained ten integrated films; this was made available online and open for completion by anyone worldwide. The recruitment methods are described together with the convenience and snowballing sampling framework. The most successful strategy involved the utilisation of social media; Facebook, Blogging, Twitter, LinkedIn and Google Ads led to the ascertainment of over 75 % of the final sample. We conclude that the strategies used were successful in recruiting in eclectic mix of appropriate participants. Design of the survey and results from the study are presented separately.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.