ArticleBMC palliative care2014
Public preferences and priorities for end-of-life care in Kenya: a population-based street survey.
Article in BMC palliative care, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
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Who cites it
17 citing papers in PubMed.
- Impact of training on knowledge, confidence and attitude amongst community health volunteers in the provision of community-based palliative care in rural Kenya.BMC palliative care · 2024Article
- Breast Health Awareness: Understanding Health-Seeking Behavior in Western Kenya.Annals of surgical oncology · 2024Article
- EOLinPLACE: an international research project to reform the way dying places are classified and understood.Palliative care and social practice · 2024Article
- Quality of Dying and Death of Patients With Cancer in Hospice Care in Uganda.JCO global oncology · 2023Article
- Preference for initiation of end-of-life care discussion in Indonesia: a quantitative study.BMC palliative care · 2022Article
- Good death: An exploratory study on perceptions and attitudes of patients, relatives, and healthcare providers, in northern Tanzania.PloS one · 2020Article
- Evaluation of the Quality of Dying and Death Questionnaire in Kenya.Journal of global oncology · 2019Article
- Prediction of life-story narrative for end-of-life surrogate's decision-making is inadequate: a Q-methodology study.BMC medical ethics · 2019Article
- A Prospective Cohort Study of Factors Associated With Place of Death Among Patients With Late-Stage Cancer in Southern Africa.Journal of pain and symptom management · 2019Article
- Palliative Care Development in Africa: Lessons From Uganda and Kenya.Journal of global oncology · 2018Review
- End-of-Life Palliative Care Practices and Referrals in Uganda.Journal of palliative medicine · 2018Article
- Place of death for people with HIV: a population-level comparison of eleven countries across three continents using death certificate data.BMC infectious diseases · 2018Article
- Factors that influence advance directives completion amongst terminally ill patients at a tertiary hospital in Kenya.BMC palliative care · 2017Article
- Typology of end-of-life priorities in Saudi females: averaging analysis and Q-methodology.Patient preference and adherence · 2016Article
- Exploring end of life priorities in Saudi males: usefulness of Q-methodology.BMC palliative care · 2015Article
- Article
- Barriers to the Provision and Utilization of Palliative Care in Africa: A Rapid Scoping Review.Indian journal of palliative careArticle
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEnd-of-life care needs are great in Africa due to the burden of disease. This study aimed to explore public preferences and priorities for end-of-life care in Nairobi, Kenya.
methodsPopulation-based street survey of Kenyans aged ≥18; researchers approached every 10th person, alternating men and women. Structured interviews investigated quality vs. quantity of life, care priorities, preferences for information, decision-making, place of death (most and least favourite) and focus of care in a hypothetical scenario of serious illness with <1 year to live. Descriptive analysis examined variations.
results201 individuals were interviewed (100 women) representing 17 tribes (n = 90 44.8%, Kikuyu). 56.7% (n = 114) said they would always like to be told if they had limited time left. The majority (n = 121, 61.4%) preferred quality of life over quantity i.e. extending life (n = 47, 23.9%). Keeping a positive attitude and ensuring relatives/friends were not worried were prioritised above having pain/discomfort relieved. The three most concerning problems were pain (45.8%), family burden (34.8%) and personal psychological distress (29.8%). Home was both the most (51.1% n = 98) and least (23.7% n = 44) preferred place of death.
conclusionThis first population-based survey on preferences and priorities for end-of-life care in Africa revealed that psycho-social domains were of greatest importance to the public, but also identified variations that require further exploration. If citizens' preferences and priorities are to be met, the development of end-of-life care services to deliver preferences in Kenya should ensure an holistic model of palliative care responsive to individual preferences across care settings including at home.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.