ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2014
Improving diversity in cancer research trials: the story of the Cancer Disparities Research Network.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 30 citations in OpenAlex.
- Chronic inflammation is associated with increased anxiety in the Cancer Disparities Research Network.Brain, behavior, & immunity - health · 2026Article
- Beyond Barriers: Achieving True Equity in Cancer Care.Current oncology (Toronto, Ont.) · 2025Review
- Associations Between Race/Ethnicity, Language, and Enrollment on Cancer Research Studies.The oncologist · 2023Article
- Improving Multi-site Interaction Through Remote Learning Technology: Report from a Training Program to Increase Underrepresented Undergraduate and Medical Students in Health Disparities Research.Journal of cancer education : the official journal of the American Association for Cancer Education · 2022Article
- Using a Warm Hand-Off Approach to Enroll African American Caregivers in a Multi-Site Clinical Trial: The Handshake Protocol.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Article
- A pilot study of a culturally-appropriate, educational intervention to increase participation in cancer clinical trials among African Americans and Latinos.Cancer causes & control : CCC · 2021Article
- Blood cancer health disparities in the United States Hispanic population.Cold Spring Harbor molecular case studies · 2021Article
- Health Literacy Research in Rural Areas.Studies in health technology and informatics · 2020Article
- A Community-Based Approach to Biospecimen Collection Among Pacific Islanders.Health promotion practice · 2020Article
- Educating Hispanics About Clinical Trials and Biobanking.Journal of cancer education : the official journal of the American Association for Cancer Education · 2019Article
- Improving Research Literacy in Diverse Minority Populations with a Novel Communication Tool.Journal of cancer education : the official journal of the American Association for Cancer Education · 2019Article
- Enrollment and biospecimen collection in a multiethnic family cohort: the Northern California site of the Breast Cancer Family Registry.Cancer causes & control : CCC · 2019Article
- A Qualitative Study Exploring Barriers and Facilitators of Enrolling Underrepresented Populations in Clinical Trials and Biobanking.Frontiers in cell and developmental biology · 2019Article
- Urban-Dwelling Community Members' Views on Biomedical Research Engagement.Qualitative health research · 2017Article
- Community Perceptions of Biobanking Participation: A Qualitative Study among Mexican-Americans in Three Texas Cities.Public health genomics · 2017Article
- Development and validation of the biobanking attitudes and knowledge survey-Spanish (BANKS-SP).Journal of community genetics · 2016Article
- Adaptation of a Cancer Clinical Trials Education Program for African American and Latina/o Community Members.Health education & behavior : the official publication of the Society for Public Health Education · 2016Article
- The Development of a Communication Tool to Facilitate the Cancer Trial Recruitment Process and Increase Research Literacy among Underrepresented Populations.Journal of cancer education : the official journal of the American Association for Cancer Education · 2015Article
- To Share or Not to Share? A Survey of Biomedical Researchers in the U.S. Southwest, an Ethnically Diverse Region.PloS one · 2015Article
- Psychosocial aspects of quality of life outcomes in post-treatment human papillomavirus-associated cancer survivors in the United States: A scoping review.Health psychology openReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 5 institutions in 1 country.
Funding
Abstract
The participation of racial and ethnic minorities and underserved populations in clinical trials is a critical link between scientific innovation and improvements in health care delivery and health outcomes. However, these population groups continue to be underrepresented in research. We describe the development of the Cancer Disparities Research Network (CDRN) to improve minority and underserved populations' participation in biobanking research. Between February and October 2011, we conducted a regional assessment to identify challenges and opportunities for cancer trials and biobanking research across the CDRN. Representatives from ten CDRN biorepository facilities completed an online survey assessing their facilities' minority biospecimen collection, biobanking practices, and education/outreach initiatives. Representatives of eight facilities also participated in stakeholder interviews. The majority (70%) of facilities reported that specimens were available for research, although only one tenth of these specimens were from non-White patients. Most facilities collected a patient's age, gender, race, medical history, and ethnicity with samples; however, less than half also collected family health history, education level, household income, or primary language spoken. In addition, few institutions collected Asian or Hispanic subgroup information. Only a few reported biospecimen collection outreach programs specifically targeting minority and underserved populations. Biospecimen directors and administrators indicated that funding, biospecimen sharing procedures, and standardization barriers limited their facilities from collaborating in biospecimen collection programs, despite their great interest. These findings suggest that the CDRN can provide opportunities for collaboration, resource sharing, and fostering of research ideas to address cancer disparities in biospecimen research.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.