ArticleBMJ open2014
Social support for South Asian Muslim parents with life-limiting illness living in Scotland: a multiperspective qualitative study.
Article in BMJ open, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 3 of them syntheses that pooled it.
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Who cites it
7 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- South Asian Experiences of Palliative and End-of-Life Care Provision in the UK: A Systematic Literature Review and Thematic Synthesis.Journal of palliative care · 2026Pooled it
- First generation migrants' experiences of terminal illness: a systematic review of diasporic dying.BMC palliative care · 2025Pooled it
- Muslims and End-of-Life Healthcare in Non-Muslim Majority Nations: A Systematic Literature Review.Journal of pain and symptom management · 2024Pooled it
- Exploring stroke awareness in an ethnic minority population: the impact of language and social support.BMC public health · 2026Article
- Gender differences in quality of dying and death among older adults: a cross-sectional study in China.Frontiers in public health · 2025Article
- Intergenerational differences in social support for the community-living elderly in Beijing, China.Health science reports · 2018Article
- Social support and the self-rated health of older people: A comparative study in Tainan Taiwan and Fuzhou Fujian province.Medicine · 2016Observational
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo explore experiences of social support needs among South Asian Muslim patients with life-limiting illness, living in Scotland, who are parents of young children.
designSecondary analysis of data from a multiperspective, longitudinal Scottish study involving in-depth semistructured interviews with patients, their nominated carers and healthcare professionals. Data were analysed using interpretive phenomenological analysis.
settingEdinburgh, Scotland.
participantsSouth-Asian Muslim patients with life-limiting illness with children under the age of 18 (n=8), their carer (n=6) and their healthcare professional.
main outcome measuresAccess and provision of social support in palliative care.
resultsOpen-ended qualitative interviews identified four main themes: (1) parental sadness over being unable to provide tangible support; (2) parental desire to continue to provide emotional support; (3) limited availability of informal social support networks; and (4) differing perspectives between healthcare professionals and patients on patient access to social support sources, with a subtheme being the capacity of male carers to provide social support. South-Asian parents at the end of life had limited access to extended-network support. Gender roles appeared as challenging for healthcare providers who at times overestimated the amount of support a female carer could provide and underestimated the amount of support male carers provided. Implications for practice include the need for greater awareness by healthcare providers of the social support needs of ethnic minority and migrant parents with life-limiting illnesses and especially an awareness of the importance of the role of male and female carers. Further research is needed to explore how the timing of migration impacts the need for and availability of tangible and emotional informal social support among ethnic minority parents with life-limiting illness.
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