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ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2014

Concept analysis of the patient reported outcomes measurement information system (PROMIS(®)) and the international classification of functioning, disability and health (ICF).

Carole A Tucker, Alarcos Cieza, Anne W Riley, Gerold Stucki, Jin Shei Lai, T Bedirhan Ustun, Nenad Kostanjsek, William Riley, David Cella, Christopher B Forrest

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In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
33citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

33 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Using a measurement type-independent metric to compare patterns of determinants between patient-reported versus performance-based physical function in hemodialysis patients.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Trial
  3. Article
  4. Content analysis of PROMIS physical function banks using the international classification of functioning, disability and health.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  5. Review
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Measuring PROMIS® Global Health in Early Childhood.Journal of pediatric psychology · 2022
    Article
  13. Observational
  14. Review
  15. Article
  16. Review
  17. Article
  18. Article
  19. Proposal to extend the PROMIS® item bank v2.0 'Ability to Participate in Social Roles and Activities': item generation and content validity.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020
    Article
  20. Core patient-reported outcome domains for routine clinical care in chronic pain management: patients' and healthcare professionals' perspective.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Carole A TuckerCollege of Health Professions and Social Work, Temple University, 3307 North Broad Street, Philadelphia, PA, 19140, USA, tuckerc@temple.edu.
Alarcos Cieza
Anne W Riley
Gerold Stucki
Jin Shei Lai
T Bedirhan Ustun
Nenad Kostanjsek
William Riley
David Cella
Christopher B Forrest

Funding

Pediatric PROMIS: Advancing the Measurement and Conceptualizaiton of Child HealthU01AR057956 · NIAMS · CHILDREN'S HOSP OF PHILADELPHIA · PI FORREST, CHRISTOPHER B · 2009 to 2014
$4.9M
NIAMS NIH HHS U01 AR057956
6 · The paper itself

Abstract

purposeThe Patient Reported Outcomes Measurement Information System (PROMIS (®) ) is a US National Institutes of Health initiative that has produced self-report outcome measures, using a framework of physical, mental, and social health defined by the World Health Organization in 1948 (WHO, in Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 1948). The World Health Organization's International Classification of Functioning, Disability and Health (ICF) is a comprehensive classification system of health and health-related domains that was put forward in 2001. The purpose of this report is to compare and contrast PROMIS and ICF conceptual frameworks to support mapping of PROMIS instruments to the ICF classification system .

methodsWe assessed the objectives and the classification schema of the PROMIS and ICF frameworks, followed by content analysis to determine whether PROMIS domain and sub-domain level health concepts can be linked to the ICF classification.

resultsBoth PROMIS and ICF are relevant to all individuals, irrespective of the presence of health conditions, person characteristics, or environmental factors in which persons live. PROMIS measures are intended to assess a person's experiences of his or her health, functional status, and well-being in multiple domains across physical, mental, and social dimensions. The ICF comprehensively describes human functioning from a biological, individual, and social perspective. The ICF supports classification of health and health-related states such as functioning, but is not a specific measure or assessment of health, per se. PROMIS domains and sub-domain concepts can be meaningfully mapped to ICF concepts.

conclusionsTheoretical and conceptual similarities support the use of PROMIS instruments to operationalize self-reported measurement for many body function, activity and participation ICF concepts, as well as several environmental factor concepts. Differences observed in PROMIS and ICF conceptual frameworks provide a stimulus for future research and development.

Indexed as

Health StatusInternational Classification of DiseasesInternational Classification of Functioning, Disability and HealthPatient Outcome AssessmentQuality of LifeConcept FormationHumansInformation SystemsInterpersonal RelationsMental HealthPersons with DisabilitiesSelf ReportSocial SupportTerminology as TopicUnited StatesWorld Health Organization

Identifiers

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.