Great expectations for participatory research: what have we achieved in the last ten years?

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it.

1. Social Media and Social Functioning in Psychosis: A Systematic Review.Journal of medical Internet research · 2019
   Pooled it
2. Citizen science for research in public health: perspective.Frontiers in public health · 2025
   Article
3. The interdependence of substance use, satisfaction with life, and psychological distress: a dynamic structural equation model analysis.Frontiers in psychiatry · 2024
   Article
4. Investigating mental health service user views of stigma on Twitter during COVID-19: a mixed-methods study.Journal of mental health (Abingdon, England) · 2022
   Article
5. Investigation of Carers' Perspectives of Dementia Misconceptions on Twitter: Focus Group Study.JMIR aging · 2022
   Article
6. Risk-based contracting for high-need Medicaid beneficiaries: The Arkansas PASSE program.Health policy OPEN · 2021
   Article
7. Improving quality of life assessments for high-need adult Medicaid service users with mental health conditions.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021
   Article
8. Development and psychometric properties of a new brief scale for subjective personal agency (SPA-5) in people with schizophrenia.Epidemiology and psychiatric sciences · 2020
   Article
9. The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?Research involvement and engagement · 2020
   Article
10. "A Life More Ordinary" Processes of 5-Year Recovery From Substance Abuse. Experiences of 30 Recovered Service Users.Frontiers in psychiatry · 2019
    Article
11. Exploring the potential role of community engagement in evaluating clinical and translational science grant proposals.Journal of clinical and translational science · 2018
    Article
12. Impact on the individual: what do patients and carers gain, lose and expect from being involved in research?Journal of mental health (Abingdon, England) · 2016
    Article
13. Many miles made and a long way to go.Epidemiology and psychiatric sciences · 2014
    Article
14. Taking the long view: an emerging framework for translational psychiatric science.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2014
    Article
15. Codeveloping and Evaluating a Campaign to Reduce Dementia Misconceptions on Twitter: Machine Learning Study.JMIR infodemiology
    Article

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

Authors and funding

1 author.

Funding

Abstract

PubMed holds no abstract for this paper.