ArticlePrimary care respiratory journal : journal of the General Practice Airways Group2014
Coordination of end-of-life care for patients with lung cancer and those with advanced COPD: are there transferable lessons? A longitudinal qualitative study.
Article in Primary care respiratory journal : journal of the General Practice Airways Group, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
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Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- HELPing older people with very severe chronic obstructive pulmonary disease (HELP-COPD): mixed-method feasibility pilot randomised controlled trial of a novel intervention.NPJ primary care respiratory medicine · 2015Trial
- Article
- Breaking free from prognostic paralysis in chronic advanced diseases.Palliative & supportive care · 2025Article
- Healthcare professionals' views of palliative care for American war veterans with non-malignant respiratory disease living in a rural area: a qualitative study.BMC palliative care · 2019Article
- Patients' experience of lung cancer care coordination: a quantitative exploration.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Multidimensional needs of patients living and dying with heart failure in Kenya: a serial interview study.BMC palliative care · 2018Article
- Improving care for advanced COPD through practice change: Experiences of participation in a Canadian spread collaborative.Chronic respiratory disease · 2018Review
- Palliative and end-of-life care research in Scotland 2006-2015: a systematic scoping review.BMC palliative care · 2018Article
- Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases.European clinical respiratory journal · 2018Review
- The provision of generalist and specialist palliative care for patients with non-malignant respiratory disease in the North and Republic of Ireland: a qualitative study.BMC palliative care · 2017Article
- Pharmacological Management of People Living with End-Stage Chronic Obstructive Pulmonary Disease.Drugs & aging · 2017Article
- Differences in place of death between lung cancer and COPD patients: a 14-country study using death certificate data.NPJ primary care respiratory medicine · 2017Article
- Which patients with advanced respiratory disease die in hospital? A 14-year population-based study of trends and associated factors.BMC medicine · 2017Article
- The view of pulmonologists on palliative care for patients with COPD: a survey study.International journal of chronic obstructive pulmonary disease · 2017Article
- Development of the ProPal-COPD tool to identify patients with COPD for proactive palliative care.International journal of chronic obstructive pulmonary disease · 2017Article
- Factors Associated with Transition from Community Settings to Hospital as Place of Death for Adults Aged 75 and Older: A Population-Based Mortality Follow-Back Survey.Journal of the American Geriatrics Society · 2016Article
- The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study.BMC pulmonary medicine · 2015Article
- Working in harmony with Nature: highlights from 2014, and a look to the future.NPJ primary care respiratory medicine · 2015Article
- Avoid 'prognostic paralysis'--just get ahead and plan and co-ordinate care.NPJ primary care respiratory medicine · 2014Article
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7 authors.
Funding
Abstract
backgroundCare coordination is defined as good communication between professionals to enable access to services based on need.
aimsTo explore patients' experience of care coordination in order to inform current debates on how best to coordinate care and deliver services in end-of-life for patients with lung cancer and those with chronic obstructive pulmonary disease (COPD).
methodsA qualitative study involving serial interviews was performed in 18 patients recruited from three hospital outpatient clinics situated in a hospital. Interviews were transcribed verbatim and data were analysed thematically.
resultsData comprised 38 interviews. Patients experiencing services related to lung cancer reported good access enabled by the involvement of a keyworker. This contrasted with COPD patients' experiences of services. The keyworker coordinated care between and within clinical settings, referred patients to community palliative care services, helped them with financial issues, and provided support.
conclusionsFor patients with lung cancer, the keyworker's role augmented access to various services and enabled care based on their needs. The experiences of patients with COPD highlight the importance of providing a keyworker for this group of patients in both secondary and primary care.
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