ArticleSocial science research2014
Online questionnaire development: using film to engage participants and then gather attitudes towards the sharing of genomic data.
Article in Social science research, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Impact of BRCA1/2 status on young women's sexual function, relationships, and reproduction after predictive genetic testing.European journal of human genetics : EJHG · 2026Article
- Motives of contributing personal data for health research: (non-)participation in a Dutch biobank.BMC medical ethics · 2020Article
- Australians' views and experience of personal genomic testing: survey findings from the Genioz study.European journal of human genetics : EJHG · 2019Article
- Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research.Human genomics · 2018Article
- Stakeholders in psychiatry and their attitudes toward receiving pertinent and incident findings in genomic research.American journal of medical genetics. Part A · 2017Article
- The elusive ideal of inclusiveness: lessons from a worldwide survey of neurologists on the ethical issues raised by whole-genome sequencing.BMC medical ethics · 2017Article
- Your DNA, Your Say.The New bioethics : a multidisciplinary journal of biotechnology and the body · 2017Article
- Recruiting for health, medical or psychosocial research using Facebook: Systematic review.Internet interventions · 2016Review
- Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.European journal of human genetics : EJHG · 2016Article
- Potential research participants support the return of raw sequence data.Journal of medical genetics · 2015Article
- Finding people who will tell you their thoughts on genomics-recruitment strategies for social sciences research.Journal of community genetics · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
How can a researcher engage a participant in a survey, when the subject matter may be perceived as 'challenging' or even be totally unfamiliar to the participant? The Genomethics study addressed this via the creation and delivery of a novel online questionnaire containing 10 integrated films. The films documented various ethical dilemmas raised by genomic technologies and the survey ascertained attitudes towards these. Participants were recruited into the research using social media, traditional media and email invitation. The film-survey strategy was successful: 11,336 initial hits on the survey website led to 6944 completed surveys. Participants included from those who knew nothing of the subject matter through to experts in the field of genomics (61% compliance rate), 72% of participants answered every single question. This paper summarises the survey design process and validation methods applied. The recruitment strategy and results from the survey are presented elsewhere.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.