Evidence map›Paper›PMID 24465450›Full record

ArticlePloS one2014

Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners' views and experiences.

Aline De Vleminck, Koen Pardon, Kim Beernaert, Reginald Deschepper, Dirk Houttekier, Chantal Van Audenhove, Luc Deliens, Robert Vander Stichele

Open access · goldAbstract read
In one paragraph

Article in PloS one, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 82 papers, 7 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
82citing papers in PubMed, 7 pooled it
10.6field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

82 citing papers in PubMed, 7 syntheses or guidelines pooled it, 212 citations in OpenAlex.

  1. Pooled it
  2. What helps or hinders the communication of poor prognosis between secondary and primary care? A systematic review with narrative synthesis.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025
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  5. Advance care planning for adults with heart failure.The Cochrane database of systematic reviews · 2020
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  8. Complex advance care planning intervention in general practice (ACP-GP): a cluster-randomised controlled trial.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024
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  17. Food for Thought: Papas Fritas.Journal of the American Geriatrics Society · 2025
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22 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 2 countries.

Aline De VleminckEnd-of-Life Care Research group, Ghent University & Vrije Universiteit Brussel (VUB), Brussels, Belgium.
Koen PardonEnd-of-Life Care Research group, Ghent University & Vrije Universiteit Brussel (VUB), Brussels, Belgium.
Kim BeernaertEnd-of-Life Care Research group, Ghent University & Vrije Universiteit Brussel (VUB), Brussels, Belgium.
Reginald DeschepperEnd-of-Life Care Research group, Ghent University & Vrije Universiteit Brussel (VUB), Brussels, Belgium.
Dirk HouttekierEnd-of-Life Care Research group, Ghent University & Vrije Universiteit Brussel (VUB), Brussels, Belgium.
Chantal Van AudenhoveLUCAS (Center for Care Research and Consultancy), Catholic University of Louvain, Louvain, Belgium.
Luc DeliensEnd-of-Life Care Research group, Ghent University & Vrije Universiteit Brussel (VUB), Brussels, Belgium ; Department of Public and Occupational Health, and EMGO+ Institute for Health and Care Research, VU University Medical Centre, Amsterdam, The Netherlands.
Robert Vander SticheleEnd-of-Life Care Research group, Ghent University & Vrije Universiteit Brussel (VUB), Brussels, Belgium ; Heymans Institute of Pharmacology, Ghent University, Ghent, Belgium.
Ghent University · BEVrije Universiteit Brussel · BEUCLouvain · BE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe long-term and often lifelong relationship of general practitioners (GPs) with their patients is considered to make them the ideal initiators of advance care planning (ACP). However, in general the incidence of ACP discussions is low and ACP seems to occur more often for cancer patients than for those with dementia or heart failure.

objectiveTo identify the barriers, from GPs' perspective, to initiating ACP and to gain insight into any differences in barriers between the trajectories of patients with cancer, heart failure and dementia.

methodFive focus groups were held with GPs (n = 36) in Flanders, Belgium. The focus group discussions were transcribed verbatim and analyzed using the method of constant comparative analysis.

resultsTHREE TYPES OF BARRIERS WERE DISTINGUISHED: barriers relating to the GP, to the patient and family and to the health care system. In cancer patients, a GP's lack of knowledge about treatment options and the lack of structural collaboration between the GP and specialist were expressed as barriers. Barriers that occured more often with heart failure and dementia were the lack of GP familiarity with the terminal phase, the lack of key moments to initiate ACP, the patient's lack of awareness of their diagnosis and prognosis and the fact that patients did not often initiate such discussions themselves. The future lack of decision-making capacity of dementia patients was reported by the GPs as a specific barrier for the initiation of ACP.

conclusionThe results of our study contribute to a better understanding of the factors hindering GPs in initiating ACP. Multiple barriers need to be overcome, of which many can be addressed through the development of practical guidelines and educational interventions.

Indexed as

Focus GroupsPhysician-Patient RelationsPractice Patterns, Physicians'AdultAdvance Care PlanningAgedAttitude of Health PersonnelBelgiumDementiaFemaleGeneral PractitionersGuidelines as TopicHealth Knowledge, Attitudes, PracticeHeart FailureHumansMale

Identifiers

PMID24465450
PMCPMC3897376
OpenAlexW2070638367

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.