Evidence map›Paper›PMID 24461569›Full record

ArticleInternational journal of qualitative studies on health and well-being2014

Life interrupted and life regained? Coping with stroke at a young age.

Kerry Kuluski, Clare Dow, Louise Locock, Renee F Lyons, Daniel Lasserson

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in International journal of qualitative studies on health and well-being, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05348044 (Feasibility Study to Increase Resilience Through an At-home Virtual Exercise Training), which is not on this map. Cited by 27 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05348044 nacompletednot on this mapstarted 2022, after this paper: background citation

Feasibility Study to Increase Resilience Through an At-home Virtual Exercise Training (Res-ET) Intervention Using Inspiratory Muscle Strength Training (IMST)

TypeinterventionalSponsorUniversity of UtahRan2022 to 2023Enrolled19ConditionsResilience, StrokeArmsRes-ET intervention
3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Finding the Extraordinary in the Ordinary: Understanding the Role of Everyday Life in Coping With Health Challenges.Nursing philosophy : an international journal for healthcare professionals · 2025
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  7. Observational
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  12. Observational
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  17. Users' experience of community-based power assisted exercise: a transition from NHS to third sector services.International journal of qualitative studies on health and well-being · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Kerry KuluskiBridgepoint Collaboratory for Research and Innovation, Bridgepoint Active Healthcare, Toronto, Ontario, Canada; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; KKuluski@bridgepointhealth.ca.
Clare DowInstitute of Health and Wellbeing, College of Social Sciences, University of Glasgow, Glasgow, UK.
Louise LocockHealth Experiences Research Group, Department of Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK; National Institute for Health Research Oxford Biomedical Research Centre, University of Oxford, The Joint Research Office, The Churchill Hospital, Headington, UK; Green Templeton College, University of Oxford, Oxford, UK.
Renee F LyonsBridgepoint Collaboratory for Research and Innovation, Bridgepoint Active Healthcare, Toronto, Ontario, Canada; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Dalla Lana Faculty of Public Health, University of Toronto, Toronto, Ontario, Canada.
Daniel LassersonNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Stroke is a leading cause of disability across the developed world, affecting an increasing number of younger people. In this article, we seek to understand the experience of stroke as a disabling life situation among young people and the strategies that they use to recover and cope. Directed content analysis was conducted from interviews with 17 community-dwelling stroke survivors aged 55 years and younger across the United Kingdom. The sample was drawn from a larger maximum variation sample of stroke survivors. Using the sociological concepts of biographical disruption and biographical repair as a guide, excerpts from the interviews pertaining to aspects of the patients' life that were interrupted, in addition to how they coped with the changes, were selected and analysed. All individuals described an "altered sense of self," a theme that included loss of identity, family disruption, and/or loss of valued activities. Individuals sought to adapt their sense of self by seeking external support, by restoring normality, and/or through positive reflection. Despite the adapted self that emerged, most individuals continued to experience impairments. While young stroke survivors adapt to their illness over time, they continue to experience impairments and disruptions in their personal and work lives. A holistic model of rehabilitation that helps individuals regain the capacity for everyday activities related to work, family life, and leisure can begin to address the emotional ramifications of diseases such as stroke, restore wellness, and work towards minimizing the burden felt by family caregivers and children.

Indexed as

Stroke RehabilitationAdaptation, PsychologicalAdultAttitude to HealthFemaleHumansInterviews as TopicMaleMiddle AgedPersonal SatisfactionPersons with DisabilitiesSocial SupportStrokeSurvivorsUnited KingdomYoung Adultcopingpatient experiencequalitativeStrokeyoung

Identifiers

PMID24461569
PMCPMC3901846

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.