ArticleHealth expectations : an international journal of public participation in health care and health policy2015
'[I would like] a place to be alone, other than the toilet'--Children's perspectives on paediatric hospital care in the Netherlands.
Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 3 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- A Systematic Review on Children's Participation in Healthcare From a Child's Perspective.Scandinavian journal of caring sciences · 2025Pooled it
- A systematic literature review on initiatives to involve children and adolescents in evaluating their hospitalization experience.BMC health services research · 2025Pooled it
- Pooled it
- "It's Not Healthy to Be Too Large"-A Qualitative Study Using Participatory Methods to Explore Children's and Adolescents' Perspectives on Obesity Treatment and Body Image.Children (Basel, Switzerland) · 2025Article
- Experiences of children during hospitalization: content analysis of interviews and paintings.BMC pediatrics · 2025Article
- Article
- Pediatric patient engagement in clinical care, research and intervention development: a scoping review.Journal of patient-reported outcomes · 2023Article
- The Best and the Worst Things About the Hospital for Children with Cancer: A Qualitative, Interview-Based Study in a Spanish Hospital.Journal of patient experience · 2023Article
- Preparation of children for elective surgery and hospitalisation: A parental perspective.Journal of child health care : for professionals working with children in the hospital and community · 2022Article
- A self-portrait: Design opportunities for a tool that supports children's involvement in brain-related health care.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- How paediatric departments in Sweden facilitate giving children a voice on their experiences of healthcare: A cross-sectional study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Young children's experiences of support when fearful during treatment for acute lymphoblastic leukaemia-A longitudinal interview study.Nursing open · 2022Article
- Research agenda setting with children with juvenile idiopathic arthritis: Lessons learned.Child: care, health and development · 2022Article
- Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol.BMJ open · 2021Article
- How do children and adolescents experience healthcare professionals? Scoping review and interpretive synthesis.BMJ open · 2021Article
- Adolescents' experiences with patient engagement in respiratory medicine.Pediatric pulmonology · 2021Article
- The Importance of the Setting during Sedation for Intrathecal Chemotherapy in Pediatric Oncology Care: A Case Study.Healthcare (Basel, Switzerland) · 2020Article
- Home-Based Pediatric Palliative Care and Electronic Health: Systematic Mixed Methods Review.Journal of medical Internet research · 2020Review
- Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method: a study protocol.Pediatric rheumatology online journal · 2018Review
- Patient participation, a prerequisite for care: A grounded theory study of healthcare professionals' perceptions of what participation means in a paediatric care context.Nursing open · 2018Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAlthough it is widely recognized that children are willing, capable and legally entitled to be active participants in their health care, parents are generally invited to evaluate paediatric hospital care and services rather than children themselves. This is problematic because parents cannot serve as the only spokespersons for the perspectives and experiences of children.
objectiveTo investigate children's experiences with and perspectives on the quality of hospital care and services in the Netherlands, and how they think care and services could be improved.
designA qualitative study incorporating different participatory data collection methods, including photovoice and children writing a letter to the chief executive of the hospital.
settingPaediatric departments of eight hospitals in the Netherlands (two teaching and six regional).
participantsChildren and adolescents (n = 63) with either acute or chronic disorders, aged between 6 and 18 years.
resultsThe research results provide insights into children's health and social well-being in hospitals. Important aspects of health, like being able to sleep well and nutrition that fits children's preferences, are structurally being neglected.
conclusionThe participatory approach brought children's ideas 'alive' and generated concrete areas for improvement that stimulated hospitals to take action. This demonstrates that participatory methods are not merely tools to gather children's views but can serve as vehicles for creating health-care services that more closely meet children's own needs and wishes.
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