Evidence map›Paper›PMID 24453769›Full record

ArticleInternational journal of MS care2013

Self-management for people with multiple sclerosis: report from the first international consensus conference, november 15, 2010.

Robert Fraser, Dawn Ehde, Dagmar Amtmann, Aimee Verrall, Kurt L Johnson, Erica Johnson, George H Kraft

Open access · bronzeAbstract read
In one paragraph

Article in International journal of MS care, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed, 2 pooled it
3.2field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 53 citations in OpenAlex.

  1. Pooled it
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  5. The effectiveness of garlic (Research in pharmaceutical sciences · 2025
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  12. Mobile Applications for Multiple Sclerosis: a Focus on Self-Management.Acta informatica medica : AIM : journal of the Society for Medical Informatics of Bosnia & Herzegovina : casopis Drustva za medicinsku informatiku BiH · 2019
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 1 country.

Robert FraserDepartment of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA, USA (RF, DE, DA, AV, KLJ, GHK); and Department of Rehabilitation Counseling, Western Washington University, Bellingham, WA, USA (EJ).
Dawn EhdeDepartment of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA, USA (RF, DE, DA, AV, KLJ, GHK); and Department of Rehabilitation Counseling, Western Washington University, Bellingham, WA, USA (EJ).
Dagmar AmtmannDepartment of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA, USA (RF, DE, DA, AV, KLJ, GHK); and Department of Rehabilitation Counseling, Western Washington University, Bellingham, WA, USA (EJ).
Aimee VerrallDepartment of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA, USA (RF, DE, DA, AV, KLJ, GHK); and Department of Rehabilitation Counseling, Western Washington University, Bellingham, WA, USA (EJ).
Kurt L JohnsonDepartment of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA, USA (RF, DE, DA, AV, KLJ, GHK); and Department of Rehabilitation Counseling, Western Washington University, Bellingham, WA, USA (EJ).
Erica JohnsonDepartment of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA, USA (RF, DE, DA, AV, KLJ, GHK); and Department of Rehabilitation Counseling, Western Washington University, Bellingham, WA, USA (EJ).
George H KraftDepartment of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, WA, USA (RF, DE, DA, AV, KLJ, GHK); and Department of Rehabilitation Counseling, Western Washington University, Bellingham, WA, USA (EJ).
University of Washington · USWestern Washington University · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

People with multiple sclerosis (MS) must manage the day-to-day effects of the disease on their lives. Self-management interventions may be helpful in this challenge. An international, multidisciplinary consensus conference was held on November 15, 2010, by the University of Washington's Rehabilitation Research and Training Center for Multiple Sclerosis (MS RRTC), with funding from the Consortium of Multiple Sclerosis Centers (CMSC) and the National Institute on Disability and Rehabilitation Research (NIDRR), to discuss the concept of self-management for people with MS. The specific goals of the consensus conference were as follows: 1) review the current research on self-management and related issues in chronic disability and specifically in MS; 2) review optimal research methodologies, outcome measurement tools, program planning frameworks, and dissemination strategies for self-management research; and 3) establish recommendations on the next steps necessary to develop, adapt, and test self-management interventions for people with MS. The consensus conference and this document are the initial steps toward achieving the stated goals. Participants in the consensus conference concluded that it is necessary to: 1) define an empirically based conceptual model of self-management for people with MS; 2) establish reliable and valid self-management outcome measures; 3) use best practices to validate models of self-management interventions; and 4) plan dissemination and knowledge translation of interventions once their effectiveness is established.

Identifiers

PMID24453769
PMCPMC3883007
OpenAlexW1968740957

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.