ArticleInternational journal of MS care2011
Meeting the needs of people with primary progressive multiple sclerosis, their families, and the health-care community.
Article in International journal of MS care, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
MS Wellness Navigator: The Effect of Nurse Practitioner (NP-led) Care on Mood, Anxiety and Health Related Quality of Life in People With Multiple Sclerosis - A Randomized Trial
Using Patient-Reported Outcomes To Improve the Care of People With Multiple Sclerosis: A Randomized Trial
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 36 citations in OpenAlex.
- Experiences of UK health-care services for people with Multiple Sclerosis: a systematic narrative review.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- The effect of nurse practitioner (NP-led) care on health-related quality of life in people with multiple sclerosis - a randomized trial.BMC neurology · 2022Trial
- A mixed methods cross-sectional study of peer support needs and barriers among multiple sclerosis caregivers in Ireland.Journal of health psychology · 2026Article
- Needs, experiences, and knowledge of people with primary progressive multiple sclerosis: a scoping review.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2026Article
- Experiences and challenges of people with multiple sclerosis and low attendance to clinical follow-up: a qualitative study.BMC neurology · 2025Article
- A review of multiple sclerosis: From pathophysiology to latest therapeutic advances.AIMS neuroscience · 2025Review
- Article
- Healthcare resources utilisation in primary progressive multiple sclerosis.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2018Article
- Perspectives from the Patient and the Healthcare Professional in Multiple Sclerosis: Social Media and Patient Education.Neurology and therapy · 2018Article
- Exploring Wellness Interventions in Progressive Multiple Sclerosis: an Evidence-Based Review.Current treatment options in neurology · 2018Review
- Comparative utility of disability progression measures in PPMS: Analysis of the PROMiSe data set.Neurology(R) neuroimmunology & neuroinflammation · 2017Article
- Who is Taking Care of the Caregiver?Journal of patient experience · 2015Article
- Barriers to clinical follow-up visits in multiple sclerosis: A nationwide register-based study.Multiple sclerosis journal - experimental, translational and clinicalArticle
- Sex-dependent bioactive lipid mediator profiles in multiple sclerosis.Multiple sclerosis journal - experimental, translational and clinicalArticle
- Online Peer Support for People With Multiple Sclerosis: A Narrative Synthesis Systematic Review.International journal of MS careArticle
- Access to and Use of Clinical Services and Disease-Modifying Therapies by People with Progressive Multiple Sclerosis in the United Kingdom.International journal of MS careArticle
- Reasons Patients With Primary Progressive Multiple Sclerosis Contact Their Specialist Nurses.International journal of MS careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Although major advances have been made in delaying or preventing progression for the relapsing forms of multiple sclerosis (MS), little progress has been made to date in disease management for primary progressive MS (PPMS). Treatment strategies are largely focused on managing the symptoms of the disease and providing counseling and other forms of psychosocial support. The nurse plays a major role in managing these patients. This article summarizes a collaborative effort by the National Multiple Sclerosis Society and the Multiple Sclerosis Association of America to analyze the needs of this patient population and respond with programs that will meet those needs. This approach to developing a needs assessment is broadly applicable to other patient populations.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.