ArticleAgeing and society2014
Rural dementia carers: formal and informal sources of support.
Article in Ageing and society, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 41 citations in OpenAlex.
- Pooled it
- Utilization of home- and community-based services among rural family caregivers of persons with dementia: the role of the area deprivation index.Frontiers in public health · 2025Trial
- Spousal Dementia Exposure and Risk of Dementia.JAMA network open · 2026Article
- Representing the Needs of Rural Caregivers of People Living With Alzheimer's Disease and Related Dementias Through User Personas.Innovation in aging · 2024Article
- Health equity and wellbeing among older people's caregivers in New Zealand during COVID-19: Protocol for a qualitative study.PloS one · 2022Article
- Home care nursing for persons with dementia from a family caregivers' point of view: Predictors of utilisation in a rural setting in Austria.Health & social care in the community · 2022Article
- Spousal Dementia Caregiving to Widowhood: Perceptions of Older Urban and Rural Widows.Western journal of nursing research · 2020Article
- Informal support for people with Alzheimer's disease and related dementias in rural Uganda: a qualitative study.International journal of mental health systems · 2020Article
- Influences on the access to and use of formal community care by people with dementia and their informal caregivers: a scoping review.BMC health services research · 2019Article
- Stability of home-based care arrangements for people living with dementia: protocol of a meta-study on mixed research.BMJ open · 2018Article
- Why carers use adult day respite: a mixed method case study.BMC health services research · 2014Article
- Characteristics of Persons Living With HIV Who Have Informal Caregivers in the cART Age of the Epidemic.The Journal of the Association of Nurses in AIDS Care : JANACArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Primary carers provide much of the day-to-day care for community-dwelling people living with dementia (PWD). Maintaining that contribution will require a more in-depth understanding of the primary carer role and the support needs that flow from that role. This study explored patterns of formal and informal support utilisation by people caring for a PWD in a rural-regional context. In-depth semi-structured interviews were conducted with 18 rural primary carers of a PWD and thematically analysed. Participant primary carers' almost total commitment to, and absorption in their role and their assumption of ultimate responsibility for the PWD's wellbeing meant that external social context, such as rurality, became less relevant. Carer networks effectively contracted to those key individuals who were central to supporting them in their caring task. External sources of support were tightly managed with strong boundaries around the provision of direct care to the PWD largely excluding all but professional providers. Primary carers are generally categorised along with other family and friends as informal care. However, in assuming
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.