Evidence map›Paper›PMID 24440148›Full record

ArticleJournal of biomedical informatics2014

A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: a privacy-protecting remote access system for health-related research and evaluation.

Kerina H Jones, David V Ford, Chris Jones, Rohan Dsilva, Simon Thompson, Caroline J Brooks, Martin L Heaven, Daniel S Thayer, Cynthia L McNerney, Ronan A Lyons

Abstract read
In one paragraph

Article in Journal of biomedical informatics, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 139 papers.

0numbers the graph read from it
0cells of the map it votes in
139citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

139 citing papers in PubMed.

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  13. Antecedents and outcomes of a later attention-deficit hyperactivity disorder (ADHD) diagnosis in females.The British journal of psychiatry : the journal of mental science · 2026
    Article
  14. Article
  15. Mothers Seeking Sanctuary in Wales: a Cohort Profile.International journal of population data science · 2026
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  16. Article
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  18. Article
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79 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Kerina H JonesCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK. Electronic address: k.h.jones@swansea.ac.uk.
David V FordCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.
Chris JonesCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.
Rohan DsilvaCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.
Simon ThompsonCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.
Caroline J BrooksCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.
Martin L HeavenCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.
Daniel S ThayerCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.
Cynthia L McNerneyCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.
Ronan A LyonsCollege of Medicine, ILS2, Swansea University, Swansea, Wales SA2 8PP, UK.

Funding

Medical Research Council MR/K006525/1Medical Research Council MR/K023233/1
6 · The paper itself

Abstract

With the current expansion of data linkage research, the challenge is to find the balance between preserving the privacy of person-level data whilst making these data accessible for use to their full potential. We describe a privacy-protecting safe haven and secure remote access system, referred to as the Secure Anonymised Information Linkage (SAIL) Gateway. The Gateway provides data users with a familiar Windows interface and their usual toolsets to access approved anonymously-linked datasets for research and evaluation. We outline the principles and operating model of the Gateway, the features provided to users within the secure environment, and how we are approaching the challenges of making data safely accessible to increasing numbers of research users. The Gateway represents a powerful analytical environment and has been designed to be scalable and adaptable to meet the needs of the rapidly growing data linkage community.

Indexed as

Computer SecurityPrivacyResearchData linkagee-Records researchPrivacy-protectionRemote access system

Identifiers

PMID24440148
PMCPMC4139270

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.